dadspooh
Member
- Joined
- May 28, 2008
- Messages
- 14
- Reason
- Loved one DX
- Country
- US
- State
- PA
- City
- Brockway
Hi. I am the daughter of an ALS patient. My father and I have always been very close and this is a very sad time for us. He was recently placed on a ventilator. We try to be supportive for my mother who is his full time caregiver until we can find some help for her, but the help never feels like enough. It's hard to see him suffering and difficult to talk to people about it as the old saying"It'll get better" just doesn't apply here. My father was diagnosed 15 months ago and deteriorated rapidly. I try to deal with it by having fundraisers for the ALS walk and by watching the smile of my 3 year old daughter when we talk about her Pap-Pap or when she sees him. I can't wait to "meet" others who will understand the small joys and sadness that those of us living through this go through. Dadspooh