Old 05-18-2018, 08:29 PM #1 (permalink)
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City: Sulphur
State: LA
Country: USA
Diagnosed: 06/2015
Interest: I am a family member of someone with ALS/MND.
Posts: 4
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Default Hello all

I've followed and appreciated tips and words of comfort for a while now but only signed up in Feb. My wife/best friend was DX in June of 15 at the age of 44 with Bulbar on set, symptoms actually started in Oct of 14. At DX was when we found out that she is the 7th one in the family tree with it. C9ORF72 was confirmed at her first clinic. We were blessed for her to keep mobility until Sept 17. As a fulltime cals since Dec 1, I can say that this forum has helped me cope and keep my sanity. Thank you all for being a help to many. We are still fighting the fight, it's just harder to finish the rounds sometimes.
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Old 05-18-2018, 09:03 PM #2 (permalink)
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Default Re: Hello all

I'm sorry to welcome you here, but glad that you've found the Forum useful!
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Billard (05-19-2018)
Old 05-18-2018, 09:15 PM #3 (permalink)
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Default Re: Hello all

Very sorry to hear about your wife, Billard. Let us know how we can help.

Best,
Laurie
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Old 05-18-2018, 09:34 PM #4 (permalink)
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Default Re: Hello all

Welcome to the forum, as you said, it is a good place to get all kinds of information and some shoulders to lean on if needed. I was like you, at first watching from the outside. Now I'll through my 2 cents worth in every now and a then.
Join in when you can.
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Old 05-19-2018, 01:20 PM #5 (permalink)
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Default Re: Hello all

Feel free to ask questions, vent, whatever you need to help you and your wife.
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