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Billard

New member
Joined
Feb 13, 2018
Messages
4
Reason
Loved one DX
Diagnosis
06/2015
Country
US
State
LA
City
Sulphur
I've followed and appreciated tips and words of comfort for a while now but only signed up in Feb. My wife/best friend was DX in June of 15 at the age of 44 with Bulbar on set, symptoms actually started in Oct of 14. At DX was when we found out that she is the 7th one in the family tree with it. C9ORF72 was confirmed at her first clinic. We were blessed for her to keep mobility until Sept 17. As a fulltime cals since Dec 1, I can say that this forum has helped me cope and keep my sanity. Thank you all for being a help to many. We are still fighting the fight, it's just harder to finish the rounds sometimes.
 
I'm sorry to welcome you here, but glad that you've found the Forum useful! :)
 
Very sorry to hear about your wife, Billard. Let us know how we can help.

Best,
Laurie
 
Welcome to the forum, as you said, it is a good place to get all kinds of information and some shoulders to lean on if needed. I was like you, at first watching from the outside. Now I'll through my 2 cents worth in every now and a then.
Join in when you can.
 
Feel free to ask questions, vent, whatever you need to help you and your wife.
 
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