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LauraJ

New member
Joined
Jun 24, 2015
Messages
2
Reason
Loved one DX
Diagnosis
05/2014
Country
US
State
Maryland
City
California
Hi, everyone :) I'm Laura, & my mom has ALS. She was officially diagnosed with Bulbar ALS just a year ago but has had symptoms for 2-3 years. Her disease has progressed rapidly; we started with hospice yesterday. I'm one of 5 children/stepchildren, but the only daughter and most local to mom and my stepdad (who has rapidly progressing Lewey Body Dementia).

Even as I'm finding my way through this, somedays it seems as if my head is spinning. We are all trying to do the best we can. I'm handling about half of mom's g-tube feedings and almost all of the calls and crises, which come several times daily. I have three semi-adult sons (ages 20, 21 & 24) who are helping as much as they can. I also have lots of support from my mom's two sisters.

I just wanted to say hello and introduce myself. I've been reading the threads and am so awed by the incredible warmth and support and caring on the forums. It's a help to me, just reading the threads.

Sending out good thoughts to all of the ALS community: those w/the disease, caregivers, family and friends.

Laura
 
Hi Laura. Nice to meet you sorry you are here and my goodness you have a full plate! I hope hospice will give you some extra support. Please come up and post in the CALS section ( or anywhere else you wish of course)
 
Laura, my heart goes out to you. I'm so glad you have support, both at home and here.
God bless, Janelle x
 
like all the others, sorry to meet you here but welcome!

Max - Sunday, June 28, 2015 10:23:23 AM

ALS sucks, but It Is What It Is ... and someone else has it worse so I'll try not to complain today!
onset 9/2010, diagnosed with ALS by Stanley Appel 8/29/2013


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Sorry you are here, but welcome. Your Mom and stepdad are lucky to have you. Try and remember to look after yourself too. This is a wonderful place to come to for support.
 
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