Newly Diagnosed

[Chris_b]

Hi all, my names Chris, 35 years old from St helens near Liverpool. I unfortunatly got diagnosed with MND on July 8th of this year. To say my family and I are devestated is an understatement!
In may this year I was looking forward to getting married to my girlfriend of 4 years, the date was set (14th feb 2011) and we had everything planned for our future! At the time I was suffering a slight weakness in my dominant right hand, and a twitching in the arm. Never really thought it could be anything bad, how wrong I was.

I've been toying with the idea of joining a forum for a few weeks before finally joining one, since then i have looked around and came across this one :grin:. It seems to be a good place for help and advice. To be honest , I was told by the specialist about education sessions with other sufferers but I just can't face them at this time. I was told it's quite rare at my age (great) but since joining a uk based forum i found quite a few people of similar age.
This seems the best place to start meeting and chatting to others with this horrid disease.

I went to a QA with various specialists a month after being told i had MND and at the time i really didnt want to know much at all! As a result i still feel a bit lost and unsure about what really lies ahead. I have no idea what form of MND i have :-?
All the form filling, things you can/cant claim for, help you can/cant get from here/there and that maze of a DLA form baffles me!

Hopefully i will get there eventually :grin:

Thanks for reading guys, im off to browse the forum.

Chris.

 

[Zaphoon]

Chris,

Welcome to the forum! I'm sorry for the reason you had to search us out. We have some folks from your side of the pond on the forum. They should be of help and comfort when it comes to dealing with all of the ins-and-outs of your health care system.

I spent over 3 years in Scotland in the 90's and loved the place!

 

[joelc]

Welcome Chris, sorry you have to be here but this is the best place for support and help you will fnd anywhere. Jump right in and ask questions or vent. We are here for you!

 

[pjm220]

I am so sorry for your diagnosis, but welcome. I am also newly diagnosed, but had been reading the forum for several months. It not only helped by validating the symptoms I was having, but also allowed me to feel less alone. You will receive support, information and true friendship here. I think that this "condition" that we are all dealing with requires as much love as we can find.

 

[Lavender Lady]

Chris, I am sorry to hear of your diagnosis at such a young age and with so much to look forward to. Don't stop living! Do all the things you want to do and make each day count twice! I was recently diagnosed as well and what I have found is that when I can relax and stop worrying I don't have as many twitches etc. and I feel better. Hang in there.

 

[Chris_b]

Thank you all for my welcome messages it's amazing how positive people can be while suffering from this shocking disease, it's inspirational. I look forward to learning as much as I can from all you good people.

Take care, Chris.

 

[Mick n Ang]

Hi Chris,

Sorry your here, Mick and I live in Bolton , England and Mick was diagnosed in Dec 2008, keep in touch

Ang