Old 04-11-2018, 08:19 AM #1 (permalink)
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Default Tobii I-15+ Lost my son Trisomy 18

Hello. My son had Trisomy 18 (not sure if I should be here) the struggles I imagine are very similar though. He had just turned 11 but sadly passed away last month and he had a Tobii communication device that I donít know what to do with along with many of his things.
Although Iíd LOVE to just donate Iím a single mother and have found myself hurting financially especially being out of work while he was in the hospital dying.

Just looking for information or anyone looking to buy. It is one of the newer models with eye gaze. I donít need what it actually costs and not looking to be greedy. Just need some help and I have this amazing machine that could change someoneís life as it did ours.
Thank you!
AM
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Old 04-11-2018, 03:12 PM #2 (permalink)
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Default Re: Tobii I-15+ Lost my son Trisomy 18

I moved your thread to the For Sale forum.
I am very sorry for your loss.
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Old 04-11-2018, 03:54 PM #3 (permalink)
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Default Re: Tobii I-15+ Lost my son Trisomy 18

Very sorry for your loss, Andover. In addition to your local ALSA chapter, would suggest also contacting the Muscular Dystrophy Association and children's hospitals in your area, for possible connections.

Best,
Laurie
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Old 04-11-2018, 07:26 PM #4 (permalink)
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Default Re: Tobii I-15+ Lost my son Trisomy 18

I am so sorry for the loss of your son AM. The Children's Hospital Boston's Augmentative Communication Program is one thought as they work with many ALS patients to get a Tobii, also Compassionate Care ALS in West Falmouth, MA has a specialist in communication devices who may be able to help out.
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Old 04-18-2018, 07:43 AM #5 (permalink)
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Default Re: Tobii I-15+ Lost my son Trisomy 18

Thank you all so much! Truly
AM
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