Hello. My courageous and wonderful son died in May of this year. He did not have ALS, but was born with an abnormally formed brain, which resulted in spastic quadriplegia. He had no voluntary movement, but was intelligent and socially at age level (22). 3 weeks before he died, he received his brand new Eyemax, which had been wildly successful for him during the trial. I was wondering if anyone would be interested in purchasing it, which would be less expensive than buying it from Dynavox (for those without insurance). The cost was $16,890.00 with the infinitely adjustable stand (he had to use it from his bed sometimes). I also bought the wirless gadget to make it an open system for the internet. All you'd need is a $45 software CD from Dyanvox to open it. They said you'd have to call to get another warranty, since they are not transferrable. I'd love to be able to donate it, but I'm left with debt as well as sorrow. So I'm open to offers. My son would want someone to be getting the benefit of this wonderful device. You are all in my thoughts and prayers as you face each new challenge.
Eyemax-----SOLD
- Status
kelly
Senior member
- Joined
- Oct 6, 2006
- Messages
- 672
- Country
- US
- State
- ny
- City
- saratoga springs
Re: Eyemax
Steves Mom...if you can't find someone to purchase the device...maybe you could donate it to the St. Peters ALS center as a tax write off. I know that we received a donated eyegaze and it has been a lifesaver for my husband who has been suffering form ALS for 4 years. I understand the financial burdens...but the gift of speech is priceless for someone battling ALS.
Steves Mom...if you can't find someone to purchase the device...maybe you could donate it to the St. Peters ALS center as a tax write off. I know that we received a donated eyegaze and it has been a lifesaver for my husband who has been suffering form ALS for 4 years. I understand the financial burdens...but the gift of speech is priceless for someone battling ALS.
hopeful warrior
Distinguished member
- Joined
- Nov 7, 2008
- Messages
- 344
- Reason
- CALS
- Diagnosis
- 01/2006
- Country
- US
- State
- xxx
- City
- on the plains
Re: Eyemax
God bless you, Steve's mom. I will keep eyes and ears open for need of Dynavox. Surely you will find a buyer. Debt just makes the loss so much worse. So sorry.
God bless you, Steve's mom. I will keep eyes and ears open for need of Dynavox. Surely you will find a buyer. Debt just makes the loss so much worse. So sorry.
TithensGuardian
Member
- Joined
- Aug 19, 2010
- Messages
- 12
- Country
- AUS
- State
- NSW
- City
- Sydney
Re: Eyemax
Hello Steve's mom,
I am interested in the Dynavox, if there is some way you could send me your email or post it here please?
Thankyou
Hello Steve's mom,
I am interested in the Dynavox, if there is some way you could send me your email or post it here please?
Thankyou
SMillheiser
Distinguished member
- Joined
- Apr 28, 2008
- Messages
- 282
- Country
- US
- State
- california
- City
- san juan capistrano
Re: Eyemax
Steve's Mom,
I'm VERY interested in the EYEMAX. Please contact me at 949-233-3045 or [email protected]. Thanks.
Stu ALSGuardianAngels.com
Steve's Mom,
I'm VERY interested in the EYEMAX. Please contact me at 949-233-3045 or [email protected]. Thanks.
Stu ALSGuardianAngels.com
SMillheiser
Distinguished member
- Joined
- Apr 28, 2008
- Messages
- 282
- Country
- US
- State
- california
- City
- san juan capistrano
Re: Eyemax
Al... Why aren't you posting my replies? I'm trying to purchase some of this stuff and will lose out. I need it for my many patients. Please post my messages. Stu
Al... Why aren't you posting my replies? I'm trying to purchase some of this stuff and will lose out. I need it for my many patients. Please post my messages. Stu
Al
Moderator emeritus
- Joined
- May 25, 2004
- Messages
- 8,083
- Reason
- PALS
- Diagnosis
- 10/2003
- Country
- CA
- State
- On
- City
- NW of Toronto
Re: Eyemax
Sorry Stu but anything with an email address or link goes into moderation. Time to be approved depends on whether David or Joel or myself are up. Joel is on the west coast and the rest are in the east. We need this to keep out the scammers and spammers.
AL.
Sorry Stu but anything with an email address or link goes into moderation. Time to be approved depends on whether David or Joel or myself are up. Joel is on the west coast and the rest are in the east. We need this to keep out the scammers and spammers.
AL.
clare
New member
- Joined
- Oct 27, 2010
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- ma
- City
- Quincy
Re: Eyemax
Stevesmom. Please accept our deepest sympathy. My brother, too does not have ALS (though my aunt did) but had a catastrophic brain stem stroke which left him in the 'locked-in' state - somewhat similar to ALS. Anyway, we are desperately searching for a Dynavox system with Eye-Gaze for him. He tried one in a demo and it is the first time he has really communicated in months. Unfortunately the 'new' price is just too steep. We are hoping to get it 'up and running' ASAP as my brother is 'counting the minutes.'
Thank you in advance.
Clare
Stevesmom. Please accept our deepest sympathy. My brother, too does not have ALS (though my aunt did) but had a catastrophic brain stem stroke which left him in the 'locked-in' state - somewhat similar to ALS. Anyway, we are desperately searching for a Dynavox system with Eye-Gaze for him. He tried one in a demo and it is the first time he has really communicated in months. Unfortunately the 'new' price is just too steep. We are hoping to get it 'up and running' ASAP as my brother is 'counting the minutes.'
Thank you in advance.
Clare
clare
New member
- Joined
- Oct 27, 2010
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- ma
- City
- Quincy
Re: Eyemax
Thanks so much for the info. I saw the Dynavox there and asked the seller how old it is. His/her reply: "I don't know I have had it for 14 months."
It might be two years. It might be five... My brother is a technogeek and has demo'd know the latest version ($17k plus thousands for mounts and such) and would be disappointed with an old model. We are looking for one that is not too old - VMax Plus with an EyeMax.
Thanks, again for the info.
Clare
Thanks so much for the info. I saw the Dynavox there and asked the seller how old it is. His/her reply: "I don't know I have had it for 14 months."
It might be two years. It might be five... My brother is a technogeek and has demo'd know the latest version ($17k plus thousands for mounts and such) and would be disappointed with an old model. We are looking for one that is not too old - VMax Plus with an EyeMax.
Thanks, again for the info.
Clare
Re: Eyemax
Hi, everyone. Since there hadn't been much interest in the Eyemax on this forum for a while, I put it on ebay. A man from Guam with ALS has purchased it ($1500 +shipping) and it's been sent to him. I'm happy because I think it will be put to good use, but I'm so sorry there isn't one for anyone who needs it. Clare, it would have been PERFECT for your brother - brand new (3 wks old) $17,000 model with all the fancy mounts, etc. I truly hope one becomes available for him.
All the best.....
Hi, everyone. Since there hadn't been much interest in the Eyemax on this forum for a while, I put it on ebay. A man from Guam with ALS has purchased it ($1500 +shipping) and it's been sent to him. I'm happy because I think it will be put to good use, but I'm so sorry there isn't one for anyone who needs it. Clare, it would have been PERFECT for your brother - brand new (3 wks old) $17,000 model with all the fancy mounts, etc. I truly hope one becomes available for him.
All the best.....
guguy
Active member
- Joined
- Jul 5, 2010
- Messages
- 67
- Reason
- Friend was DX
- Diagnosis
- 00/0000
- Country
- US
- State
- HA
- City
- None
Re: Eyemax
Thanks to Stevesmom's generosity I can communicate even when my voice is weak. Does anyone know someone to contact at Dynavox regarding what must be a defective part, specifically the VMax battery? The battery is 6 months old but was used for just 3 weeks and does not charge even a little. I sent an email to Joanne Kaufmann at Dynavox on October 27th but haven't received a response from her. I don't even know if she is the right person to talk to. The customer service rep said that because Dynavox does not manufacturer the battery and I'm not the original purchaser that they will not replace it under warranty. She gave the analogy of someone who buys a new car then sells it thereby voiding the warranty. This was a bad analogy because with every new car I ever bought the warranty did transfer to the new owner until either the mileage was exceeded or the time since purchase was past. It is not the price of the battery that bothers me it is principle if you know what I mean.
Thanks to Stevesmom's generosity I can communicate even when my voice is weak. Does anyone know someone to contact at Dynavox regarding what must be a defective part, specifically the VMax battery? The battery is 6 months old but was used for just 3 weeks and does not charge even a little. I sent an email to Joanne Kaufmann at Dynavox on October 27th but haven't received a response from her. I don't even know if she is the right person to talk to. The customer service rep said that because Dynavox does not manufacturer the battery and I'm not the original purchaser that they will not replace it under warranty. She gave the analogy of someone who buys a new car then sells it thereby voiding the warranty. This was a bad analogy because with every new car I ever bought the warranty did transfer to the new owner until either the mileage was exceeded or the time since purchase was past. It is not the price of the battery that bothers me it is principle if you know what I mean.
- Status
Similar threads
