friedgold1
Member
- Joined
- May 22, 2016
- Messages
- 15
- Reason
- Loved one DX
- Diagnosis
- 07/2016
- Country
- US
- State
- TN
- City
- Memphis
My mother has ALS and is able to only move her eyes, with some minimal movement of her left hand. She has been using a Tobii Dynavox to communicate. It has never been easy for her, but she has made it work.
In the last few days, she has had more and more difficulty typing letters, such that at this point she is only typing gibberish. We have tried everything we can to ensure that the device is aligned with her eyes and calibrated and have still not been able to make things work. We don't think that it is a device problem.
Has anyone found that as the disease advances, they are no longer able to use the Dynavox? Could it be she is not able to move her eyes as she would like to type her thoughts? Could it be that her eyes are not aligning well enough to see well enough to type?
Has anyone had experience with this problem or have any suggestions? We don't know what to do.
Thank you!
In the last few days, she has had more and more difficulty typing letters, such that at this point she is only typing gibberish. We have tried everything we can to ensure that the device is aligned with her eyes and calibrated and have still not been able to make things work. We don't think that it is a device problem.
Has anyone found that as the disease advances, they are no longer able to use the Dynavox? Could it be she is not able to move her eyes as she would like to type her thoughts? Could it be that her eyes are not aligning well enough to see well enough to type?
Has anyone had experience with this problem or have any suggestions? We don't know what to do.
Thank you!