Old 06-05-2017, 10:15 PM #1 (permalink)
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Default Breath Stacking

So happy with my response to doing breath stacking exercise. I was thinking that magnesium was helping, but the exercise has allowed me to be independent of daytime ventilator use, and I don't get distressed now, when I am laying on my back either in bed or the wheelchair.
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Old 06-06-2017, 05:55 AM #2 (permalink)
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Default Re: Breath Stacking

that is awesome!!!
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Old 06-06-2017, 07:30 AM #3 (permalink)
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Default Re: Breath Stacking

Good for you B, my Nero started me on stacking about a year ago. I don't do it all that time but she says I should.
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Old 06-06-2017, 07:30 AM #4 (permalink)
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Default Re: Breath Stacking

Happy for you. It's great to hear about things that help. Kate
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Old 06-06-2017, 08:28 AM #5 (permalink)
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Default Re: Breath Stacking

My RT taught me how to do it with the cough assist. I've been inconsistent but I did notice when I was doing it, I increased my total lung capacity (I ended up buying my own measuring equipment because I wasn't going to have another pulmonary function test.) I also believe it can even increase FVC if you do it on a regular basis.

I'm thrilled it's working for you. Every little discovery helps!
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Old 06-06-2017, 04:09 PM #6 (permalink)
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Default Re: Breath Stacking

Guess I will have to ask Dr. Google what this is.
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Old 06-06-2017, 05:23 PM #7 (permalink)
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Default Re: Breath Stacking

Quote:
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Guess I will have to ask Dr. Google what this is.
Just look it up on the forum here.
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Old 06-06-2017, 05:47 PM #8 (permalink)
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Default Re: Breath Stacking

We have a cough assist but the provider has no idea how to set it up for breath stacking. I assume you would just set the exhale mode to the minimum settings effectively rendering it to only blow out. Or is there anything that would warrant leaving it the way is and utilizing the exhale mode as part of the breath stacking exercise?
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Old 06-06-2017, 11:21 PM #9 (permalink)
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Default Re: Breath Stacking

Not having a cough assist, I am just doing the exercise while laying down, stacking three to four breaths in sync with the ventilator.
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Old 06-07-2017, 08:09 AM #10 (permalink)
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Default Re: Breath Stacking

Yea, I got mine from the ALS society, it was free. Just a hand held device that you inflate three times like bkite says.
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Old 06-11-2017, 11:13 PM #11 (permalink)
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Default Re: Breath Stacking

Can you tell me what the "divice" is? Our RT showed us how to do breath stacking using an Ambu bag (is that the device you are talking about)? Not easy for my PALS to do, since his hands are one of the most severely affected areas of his body.
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Old 06-11-2017, 11:51 PM #12 (permalink)
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Default Re: Breath Stacking

Cough Assist is a device that applies both positive and negative pressure to the lungs via a face mask and hose. It is handy for the breath stacking. The CALS is still involved with hooking up their PALS who has limited hand use.

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Old 06-12-2017, 08:15 AM #13 (permalink)
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Default Re: Breath Stacking

Buckhorn the ambu bag is very similar to what I use.
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Old 06-12-2017, 11:21 PM #14 (permalink)
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Default Re: Breath Stacking

We have been encouraged to use the Ambu bag for the breath stacking, but my PALS is not very good at doing it himself, due to his hand weakness. We still try, but it is hard for him to tolerate. We will be requesting the cough assist machine at our next ALS clinic, as my PALS has a very ineffective cough and on the rare occasions when he has choked, there is not much force behind his cough in response.
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Old 06-13-2017, 11:16 AM #15 (permalink)
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Default Re: Breath Stacking

Buckhorn, You really don't have to wait until your clinic visit. My local neuro requested it for me. Medicare and my supplement pays the "rent" for a year, then I own it.
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