Duker52
Distinguished member
- Joined
- May 22, 2016
- Messages
- 119
- Reason
- PALS
- Diagnosis
- 04/2016
- Country
- US
- State
- Virginia
- City
- Alexandria
I am a PALS with bulbar onset. I can not spit, purse my lips to kiss, puff out my cheeks, gargle, or swish water in my mouth. I also can not eat food and take only small sips of thickened water orally. I brush my teeth, but it is real effort to suck up water to rinse the toothpaste out of my mouth. I unintentionally bite the insides of my cheeks which causes sores for a couple of days.
I know all of this comes with having bulbar onset, but can anyone provide any oral hygiene tips to make sure I keep my mouth clean and don't make it a breeding ground for things like thrush. Appreciate any ideas.
Bill
I know all of this comes with having bulbar onset, but can anyone provide any oral hygiene tips to make sure I keep my mouth clean and don't make it a breeding ground for things like thrush. Appreciate any ideas.
Bill