Old 02-06-2014, 05:33 PM #1 (permalink)
New Member
 
Join Date: 2013
City: Charlotte
State: NC
Country: US
Diagnosed: 01/2013
Interest: I have been diagnosed with ALS.
Posts: 31
skikaz is on a distinguished road
skikaz skikaz is offline
New Member
Join Date: 2013
City: Charlotte
State: NC
Country: US
Diagnosed: 01/2013
Interest: I have been diagnosed with ALS.
Posts: 31
skikaz is on a distinguished road
Lightbulb My most helpful items

These gadgets are so helpful to me and I use them all the time. I thought they should be shared just in case they might help someone else. I bought these on Amazon using my Amazon Prime account so on most I didn't have to pay for shipping. I'm including a link with them.

First is a neck roll that I use to support my feet when I sleep at night. I even went back to these after receiving my custom fitted boots that were made for me. The boots did keep my feet from swelling but would cause my calf muscles to hurt. They form a u shape around the foot restricting foot drop and lets the foot breathe more.

Contour Twist Pillow with Cover Price: $19.99




Second is the portable urinals. My home aide says she has never seen these but I've been using them for almost a year, They are great. One is cheaper because it does not have the foam on the opening.

Reusable Portable Male Comfort Fit Advantage Urinal System with Spill Proof Collection Bag Price: $33.99





Re-useable Portable Standard Male Advantage Urinal System with Down Drain Bag Making It Spill Proof Price: $29.99




For those that have to have a urinal available all the time, you have this nice bag to hide the catheter bag.

Catheter Bag Cover Price + Shipping $12.95 + $4.99 shipping




This version of the portable urinal cost a lot more but for me it is worth it because of the Privacy Bag. You carry this bag on your wheelchair while at the mall or where ever, go the restroom, then come back out with this back on the chair. I keep one in the van at all times.
While on the road I can use the urinal, then set it aside not worrying about it leaking.

Reusable Portable Male Comfort Fit Advantage Urinal System with Spill Proof Collection Bag and Black Privacy Bag Price: $50.99



skikaz is offline  
Old 02-07-2014, 10:15 PM #2 (permalink)
Member
 
Join Date: 2013
City: Beaumont
State: Tx
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 137
Tx Daddy's Girl is on a distinguished road
Tx Daddy's Girl Tx Daddy's Girl is offline
Member
Join Date: 2013
City: Beaumont
State: Tx
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 137
Tx Daddy's Girl is on a distinguished road
Default Re: My most helpful items

Thanks for this. My Dad is bed ridden and I'm constantly looking for things to help him. I'm definitely going to try the pillow. I think his urinal is fine, he hasn't mentioned any difficulty but my mom had to di it for him.
Tx Daddy's Girl is offline  
Old 02-08-2014, 05:59 AM #3 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,761
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is online now
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,761
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: My most helpful items

Thanks for those links!

I'm definitely going to get one maybe 2 of those pillows too.
affected is online now  
Old 02-08-2014, 08:33 AM #4 (permalink)
Barbie's Avatar
Extremely Helpful Member
 
Join Date: 2007
City: orlando
State: FL
Country: US
Diagnosed: 01/2007
Interest: I lost a loved one to ALS/MND.
Posts: 2,672
Barbie is a jewel in the roughBarbie is a jewel in the roughBarbie is a jewel in the rough
Barbie Barbie is offline
Extremely Helpful Member
Barbie's Avatar
Join Date: 2007
City: orlando
State: FL
Country: US
Diagnosed: 01/2007
Interest: I lost a loved one to ALS/MND.
Posts: 2,672
Barbie is a jewel in the roughBarbie is a jewel in the roughBarbie is a jewel in the rough
Default Re: My most helpful items

love it thank you! I could see the drain down would alleviate spills in the bed. also the carrying case--now I care the urinal in a plastic bag if we go out in public and trying to get the urinal set up when he is wearing street close is a challenge (ya'll know you can't depend on handicapped bathrooms being right for a PALS). Pillow looks interesting and can surely be useful in many ways.
Barbie is offline  
Old 02-09-2014, 01:17 AM #5 (permalink)
New Member
 
Join Date: 2013
City: Charlotte
State: NC
Country: US
Diagnosed: 01/2013
Interest: I have been diagnosed with ALS.
Posts: 31
skikaz is on a distinguished road
skikaz skikaz is offline
New Member
Join Date: 2013
City: Charlotte
State: NC
Country: US
Diagnosed: 01/2013
Interest: I have been diagnosed with ALS.
Posts: 31
skikaz is on a distinguished road
Default Re: My most helpful items

This is how you can form the pillow around your feet.
[IMG][/IMG]

This is one the nice boots. Sometimes I still wear these when in the pwc.
skikaz is offline  
Closed Thread

Tags
als, back, catheter, cost, foot, foot drop, health, helpful, muscles, night, sleep, support, swelling, wheelchair


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Emotions and other items dbach People With ALS - "PALS" 14 05-05-2013 09:09 PM
help pleaseee! need these items asap! asaaidi Used ALS Equipment for Sale! 1 01-28-2013 11:45 AM
Catalogue of helpful items Al Tips, Tricks, and Gadgets 46 12-28-2011 11:47 AM
Items For Sale Al Used ALS Equipment for Sale! 0 07-07-2011 03:50 PM
Assortment of small items KinzaDAF Used ALS Equipment for Sale! 2 07-19-2010 05:04 PM
Items N/C available.... wheelchair... etc... SMillheiser Used ALS Equipment for Sale! 2 11-20-2009 08:50 AM
Items for sale PollyinFl Used ALS Equipment for Sale! 0 02-23-2009 06:20 PM
Sensory items k2626 Do I Have ALS? Is This ALS? 3 11-10-2008 06:52 PM


All times are GMT -5. The time now is 12:56 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016