Old 12-06-2013, 01:08 PM #1 (permalink)
New Member
 
Join Date: 2013
City: Nicholasville
State: KY
Country: US
Diagnosed: 07/2013
Interest: I am a caregiver for someone with ALS/MND.
Posts: 81
Kim C is on a distinguished road
Kim C Kim C is offline
New Member
Join Date: 2013
City: Nicholasville
State: KY
Country: US
Diagnosed: 07/2013
Interest: I am a caregiver for someone with ALS/MND.
Posts: 81
Kim C is on a distinguished road
Default Speech is gone. Need simple alternative

Mom's speech is basically gone now. She has no use of her arms or hands either. Need some ideas on simple gadgets, if there are any, that could help. She gets so very frustrated when she can't get us to understand what she is saying. Now it's mostly grunts.

Kim
Kim C is offline  
Old 12-06-2013, 02:54 PM #2 (permalink)
marypat's Avatar
Member
 
Join Date: 2012
City: london
State: OHIO
Country: US
Diagnosed: 11/2010
Interest: I have been diagnosed with ALS.
Posts: 272
marypat is on a distinguished road
marypat marypat is offline
Member
marypat's Avatar
Join Date: 2012
City: london
State: OHIO
Country: US
Diagnosed: 11/2010
Interest: I have been diagnosed with ALS.
Posts: 272
marypat is on a distinguished road
Default Re: Speech is gone. Need simple alternative

look up speak book. it might work for her
marypat is offline  
Old 12-07-2013, 06:31 PM #3 (permalink)
Jane's Avatar
Member
 
Join Date: 2004
City: St Catharines
State: Ontario
Country: CA
Interest: I lost a loved one to ALS/MND.
Posts: 164
Jane is an unknown quantity at this point
Jane Jane is offline
Member
Jane's Avatar
Join Date: 2004
City: St Catharines
State: Ontario
Country: CA
Interest: I lost a loved one to ALS/MND.
Posts: 164
Jane is an unknown quantity at this point
Default Re: Speech is gone. Need simple alternative

Kim I am so sorry for your family as you all struggle with this awful disease.
We made a simple alphabet board. Set it up so that the vowels are down the left side

abcd
efgh
ijklmn
opqrst
uvwxyz

One blink for yes and two for no. It is slow but it does work.

We also found a picture board for common needs, helpful, saves lots of blinks, just point to the pictures and keeping pointing until you get a blink.

Pictures examples, a sweater to indicate too hot or cold, a bottle or glass to indicate a need for a drink etc.

For needs like repositioning, or adjusting bipap mask, things that we could not find pictures for we made a column down side of picture chart in LARGE letters so point and blink works again.
Jane is offline  
Old 12-13-2013, 01:13 PM #4 (permalink)
Member
 
Join Date: 2009
City: Colorado Springs
State: Colorado
Country: US
Diagnosed: 08/2009
Interest: I have been diagnosed with ALS.
Posts: 408
BrianD is on a distinguished road
BrianD BrianD is offline
Member
Join Date: 2009
City: Colorado Springs
State: Colorado
Country: US
Diagnosed: 08/2009
Interest: I have been diagnosed with ALS.
Posts: 408
BrianD is on a distinguished road
Default Re: Speech is gone. Need simple alternative

I second the speakbook d o t org. And you can use it with just pointing too, you don't have to follow their directions.
BrianD is offline  
Old 12-20-2013, 05:42 PM #5 (permalink)
Member
 
Join Date: 2013
City: Grand Rapids
State: MI
Country: US
Diagnosed: 05/2000
Interest: I am the wife of a 14 year ALS/vent survivor
Posts: 101
mrvaughan is on a distinguished road
mrvaughan mrvaughan is offline
Member
Join Date: 2013
City: Grand Rapids
State: MI
Country: US
Diagnosed: 05/2000
Interest: I am the wife of a 14 year ALS/vent survivor
Posts: 101
mrvaughan is on a distinguished road
Default Re: Speech is gone. Need simple alternative

We have used different boards, and you can google some ideas on line. I just put in ALS communication board. We used a combination. I am currently working on sort of a flip chart of speech boards. 1 for entertainment, 1 for physical needs or common needs, and 1 general one. The talking and trying to be understood is so frustrating and hard for my PALS. When he uses the board, it is slow, but after getting use to it, can be used by all and allows for better interaction with the people around him.
mrvaughan is offline  
Old 01-04-2014, 03:38 PM #6 (permalink)
New Member (Say Hi)
 
Join Date: 2014
City: Vashon
State: WA
Country: US
Diagnosed: 01/2013
Interest: I have been diagnosed with ALS.
Posts: 8
NanN. is on a distinguished road
NanN. NanN. is offline
New Member (Say Hi)
Join Date: 2014
City: Vashon
State: WA
Country: US
Diagnosed: 01/2013
Interest: I have been diagnosed with ALS.
Posts: 8
NanN. is on a distinguished road
Default Re: Speech is gone. Need simple alternative

It is not simple but Tobii is a computer with -a very effective eye gaze. Follows the pupils . it is covered by medicare/medicaid. but you need an order from your speech therapist and doctor. You have to learning how to use it takes some patients but it does not match the frustration of being out of communication al together.
There are also old fashion letter boards. For pointing at. and letter decks .
NanN. is offline  
Closed Thread

Tags
frustrated, ideas, speech


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
New simple app for speech NanN. Tips, Tricks, and Gadgets 0 01-11-2014 10:12 AM
Simple question! Danny- General Discussion About ALS/MND 4 07-07-2013 03:42 PM
A very simple PEG trick rose Tips, Tricks, and Gadgets 4 01-27-2012 09:02 PM
Simple EMG question lisaann1170 Do I Have ALS? Is This ALS? 3 05-21-2010 09:10 PM
Speech Banking Dictionary - your speech bank list? robc People With ALS - "PALS" 8 05-17-2009 08:45 AM
A few simple questions ceegee Current Caregivers (CALS) 3 01-17-2009 04:32 AM
What is a Virus In a Few simple Words Geo General Discussion About PLS 0 06-19-2008 05:00 PM
Two Simple Questions I Hope fmarino General Discussion About ALS/MND 10 05-26-2008 08:02 PM
Simple Readng for ALS DX Lorie Do I Have ALS? Is This ALS? 2 03-05-2008 09:58 PM
Simple Question... lhagsjr Do I Have ALS? Is This ALS? 6 09-26-2007 09:22 PM


All times are GMT -5. The time now is 05:49 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016