Old 03-05-2014, 07:20 AM #31 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,804
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is online now
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,804
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: sucking through straw/ smoking

GalFriday, my PALS finds that smoking helps get a cough going as he has a lot of thick saliva problems and mostly the cough really is in his throat not his chest, but you still need a good cough ability to clear the throat properly.

I would think a cough assist would be wiser, but he won't use one.

The constant burning of clothes and bits of him irritates me I must admit ...
affected is online now  
Old 03-05-2014, 12:29 PM #32 (permalink)
ottawa girl's Avatar
Very Helpful Member
Forum Moderator
 
Join Date: 2012
City: Ottawa
State: Ontario
Country: CA
Diagnosed: 04/2012
Interest: I have been diagnosed with ALS.
Posts: 1,510
ottawa girl is on a distinguished road
ottawa girl ottawa girl is offline
Very Helpful Member
Forum Moderator

ottawa girl's Avatar
Join Date: 2012
City: Ottawa
State: Ontario
Country: CA
Diagnosed: 04/2012
Interest: I have been diagnosed with ALS.
Posts: 1,510
ottawa girl is on a distinguished road
Default Re: sucking through straw/ smoking

Tillie -

For safety's sake. They sell smoking aprons.
Attached Thumbnails
sucking through straw/ smoking-image.jpg  
ottawa girl is offline  
Old 03-05-2014, 02:07 PM #33 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,804
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is online now
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 9,804
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: sucking through straw/ smoking

thanks Elaine but we have an acronym in play here - ftd

I have made something far better than that, but he thinks it is hilarious to burn holes in his clothes, doesn't care if he does, and just wants to carry on his own way. I have weighed up in my mind - do I spend the last of his life arguing with him and forcing things that trigger ftd rages, or do I just laugh with him and say WTF, it is what it is.

I've chosen the second path

I'll give an example - any time he has any kind of progression and I put some equipment or routine change into place to cope with the progression he views that I am punishing him.

Sorry, I don't want to hijack the point of this thread with stuff that should go into the ftd section.
affected is online now  
Closed Thread

Tags
problems


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Tongue Twitch is the Final Straw ConstanceCream Do I Have ALS? Is This ALS? 3 06-28-2015 09:42 AM
Losing ability to suck through a straw Kim C General Discussion About ALS/MND 5 01-19-2014 07:31 AM
ALS and SMOKING BigSista People With ALS - "PALS" 10 06-08-2011 12:34 PM
Pipe Smoking ? Bad Balance People With ALS - "PALS" 12 12-21-2010 11:11 PM
Drinking through a straw SLC Caregiver Tips, Tricks, and Gadgets 4 10-09-2009 06:23 PM
formaldehyde the smoking gun? LaurentCH ALS Research News 0 08-03-2009 03:55 PM
Smoking gun for ALS diagnosis?! Searcher Do I Have ALS? Is This ALS? 55 10-27-2008 03:37 PM
Smoking and ALS ccox General Discussion About ALS/MND 11 06-02-2007 09:24 PM


All times are GMT -5. The time now is 06:48 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016