Old 10-08-2013, 01:05 PM #1 (permalink)
New Member
 
Join Date: 2013
City: NO where
State: VT
Country: US
Interest: I am a friend of someone with ALS/MND.
Posts: 11
erikita is on a distinguished road
erikita erikita is offline
New Member
Join Date: 2013
City: NO where
State: VT
Country: US
Interest: I am a friend of someone with ALS/MND.
Posts: 11
erikita is on a distinguished road
Arrow Keeping/building hand strength

Hi all. I just joined this forum because someone I care about has ALS, is one year into his diagnosis and pretty much doesnt have any support system around him. He is only 36.

My quick question and if this isnt the right thread to post this please let me know.

He has shoulder atrophy and is having problems with his grip.

~~ Anyone recommend a grip strengthener or any type of exercises he can do to try and maintain what grip he has or build it back up?~~
erikita is offline  
Old 10-08-2013, 01:25 PM #2 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 5,509
Nikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant future
♥ Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 5,509
Nikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant futureNikki J has a brilliant future
Default Re: Keeping/building hand strength

I am very sorry about your friend.
If his hand muscles are affected by ALS that means the motor neurons that make the muscles work are dead or dying. Exercise can not revive those motor neurons so he can't build muscle there. The thought is attempting to do so might harm him by adding to the stress on those motor neurons. Appropriate stretching exercises would be a better idea. He and his caregiver(s) should be taught how to do this by a physical therapist who understands ALS. His clinic can set that up
Thank you for caring about your friend
Nikki J is offline  
Old 10-08-2013, 09:02 PM #3 (permalink)
Member
 
Join Date: 2012
City: thornton
State: co
Country: US
Diagnosed: 09/2012
Interest: I have been diagnosed with ALS.
Posts: 404
patrick123 has a spectacular aura aboutpatrick123 has a spectacular aura about
patrick123 patrick123 is offline
Member
Join Date: 2012
City: thornton
State: co
Country: US
Diagnosed: 09/2012
Interest: I have been diagnosed with ALS.
Posts: 404
patrick123 has a spectacular aura aboutpatrick123 has a spectacular aura about
Default Re: Keeping/building hand strength

Sounds like your friend has a good support team and that is YOU. Someone who has a heart and cares.
patrick123 is offline  
Old 10-08-2013, 09:35 PM #4 (permalink)
Senior Member
 
Join Date: 2011
City: nixa
State: mo
Country: US
Diagnosed: 02/2010
Interest: I have been diagnosed with ALS.
Posts: 633
pearshoot is on a distinguished road
pearshoot pearshoot is offline
Senior Member
Join Date: 2011
City: nixa
State: mo
Country: US
Diagnosed: 02/2010
Interest: I have been diagnosed with ALS.
Posts: 633
pearshoot is on a distinguished road
Default Re: Keeping/building hand strength

exercise the hand but not force the hand. a device he can easily squeeze to maximum. forcing may tear down muscle that may not rebuild. consider investigating creatine, a supplement tested at least 3 times in drug trials, but not quite good enough to pass FDA standards build new muscles, no but remaining muscles may thank you for it
pearshoot is offline  
Old 10-08-2013, 10:44 PM #5 (permalink)
New Member
 
Join Date: 2013
City: NO where
State: VT
Country: US
Interest: I am a friend of someone with ALS/MND.
Posts: 11
erikita is on a distinguished road
erikita erikita is offline
New Member
Join Date: 2013
City: NO where
State: VT
Country: US
Interest: I am a friend of someone with ALS/MND.
Posts: 11
erikita is on a distinguished road
Default Re: Keeping/building hand strength

thank you for the info. He actually does NOT have a caregiver. And as far as a clinic....its 4 hours away and I think the last and only time he was there was when he was diagnosed a year ago.

I will read up on the creatine part. His hands are so so cold all the time. and his feet.
erikita is offline  
Old 10-09-2013, 09:06 AM #6 (permalink)
hjlindley's Avatar
Senior Member
 
Join Date: 2011
City: Richmond
State: VA
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 764
hjlindley is on a distinguished road
hjlindley hjlindley is offline
Senior Member
hjlindley's Avatar
Join Date: 2011
City: Richmond
State: VA
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 764
hjlindley is on a distinguished road
Default Re: Keeping/building hand strength

As other people have told you once the neuron is dead, and the muscle has wasted. There's no improving it. Be very careful about supplements as they are not regulated by the federal government for purity and content. Any supplement that has USP on the label has subject themselves to a purity standard. Without that label, it could be nothing but milk powder or worse. There've been instances of protein supplements imported from overseas that contained huge amounts of lead.

You are being a good friend. We all need those. It prescription for physical therapy should be able to be obtained from the clinic and use locally without the big drive.

Good luck, and we're here to help you if we can. I understand what your friend is up against as I am dictating this to a software program since my hands are too weak.
Hollister
hjlindley is offline  
Old 10-13-2013, 05:00 PM #7 (permalink)
Bad Balance's Avatar
Senior Member
 
Join Date: 2010
City: Atlanta
State: GA
Country: US
Diagnosed: 12/2010
Interest: I have been diagnosed with ALS.
Posts: 824
Bad Balance is on a distinguished road
Bad Balance Bad Balance is offline
Senior Member
Bad Balance's Avatar
Join Date: 2010
City: Atlanta
State: GA
Country: US
Diagnosed: 12/2010
Interest: I have been diagnosed with ALS.
Posts: 824
Bad Balance is on a distinguished road
Default Re: Keeping/building hand strength

I use a hand gripper...get the lightest lb available.

It helps, I think
Bad Balance is offline  
Closed Thread

Tags
als, atrophy, back, diagnosis, problems, shoulder, support


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
I recovered the strength of my hand, 70% juancho Do I Have ALS? Is This ALS? 10 07-03-2015 11:42 AM
Ideas for building a new home for someone with ALS? Will4 Tips, Tricks, and Gadgets 33 07-01-2015 06:30 PM
Symtoms only in left hand since 2 1/2 years - hand surgeon suspects MND Untertph Do I Have ALS? Is This ALS? 5 03-16-2015 06:51 AM
building construction MaxEidswick Comedy, Humour and Jokes 0 02-21-2015 08:02 AM
building muscle JeffP People With ALS - "PALS" 11 05-23-2010 05:47 PM
Body Building and ALS 4rhl1981 General Discussion About ALS/MND 8 01-16-2009 11:35 AM
Twitching and body building.... rose Do I Have ALS? Is This ALS? 9 11-11-2008 01:51 PM
Suggestions please, for the accessible home I am building. Earth Mama People With ALS - "PALS" 7 05-27-2008 02:30 PM
Building Fires Under Butts Geo General Discussion About PLS 13 02-19-2008 08:25 PM


All times are GMT -5. The time now is 05:51 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016