young

  1. L

    Grandchildren

    My young grandson called the other day to wish me Happy Birthday. He asked me how old I was, and I told him 72. My grandson was quiet for a moment, and then he asked, "Did you start at 1?" I was in the bathroom, putting on my makeup, under the watchful eyes of my granddaughter, as I'd done...
  2. A

    Drained

    I am new to this forum. My husband was diagnosed several years ago, although looking back, I see the changes in his personality well before his diagnosis, but didn't know what it was at the time. I try to take things one day at a time, but finding myself increasingly drained of energy. There...
  3. E

    ALS Survey - Please Take!

    Hello! My name is Emma Courtney and I am a Junior at Walnut Hills High School in Cincinnati, Ohio. This year, I am enrolled in AP Research, a year-long course that concludes in a final research paper, comprising of both research and our own investigation into a topic, that is used as the exam...
  4. Kristina1

    wheelchair for distance/fatigue

    Did anyone acquire a wheelchair early to use for outings that would be difficult/impossible due to distance walking and fatigue? I have a weird gait (spasticity) but I still walk pretty well. But I can't do much in terms of distance. We are thinking about using a wheelchair for family outings...
  5. R

    Is this atrophy?

    Hello everyone First of all I want to thank you for what are you doing, for that great support and basically for everything you do for the people on this site. So I hope you can help me in some way and decrease my level of anxiety and stress. I am a young male working as a bus driver so...
  6. H

    Young Man Panic Ring Finger

    Good Morning ladies and gents, I am hoping to shed some light on something that really is baffling me as i have been worried for nearly 3 years but have not really come to vent or ask any questions. i am 26 and an ex soldier. it starts in my right ring finger when i pinch my thumb and ring...
  7. M

    Turning to you for an opinion

    You are all amazing people offering incredible support. I stumbled across this forum accidently but would appreciate an opinion on my symptoms. I'm 40 years old with 5 mega young children, all under 6. In Sept 2016, I noticed my thumb was tiring whilst typing and using my mobile. From then, I...
  8. L

    Just found out my birth family suffers from C9 gene mutation. Please help!

    Hi, I was adopted when I was young and did not know my full medical history. I just discovered that the C9 mutation runs in my family. Over the last 4 years, 3 people have died from this - my uncle and aunt from ALS and my mom from FTD. I am unsure if anyone else is currently affected in my very...
  9. P

    Hello

    Hi there. I am a new caregiver to a young man with PLS. Just here to educate myself and learn how best to help him. He says he doesn't want pity but my heart breaks for him. I don't pity him....I just have grown to care about him. As a caregiver is this normal? I know it's a job but I feel...
  10. T

    having weird symptoms and absolutely terrified

    Hello! I am 19 years old and have been relatively healthy, but a few weeks ago my hands started shaking, which I attributed to stress due to exams. However, last night I noticed my hands were really stiff, and I started dropping things by accident. I thought it would pass with sleep but it did...
Back
Top