wrong

  1. Nikki J

    Gleason Act

    This passed 3 years ago and stopped medicare from making speech generating devices rentals. At the time this was a new policy ( before as it is currently devices were purchased and yours to keep) Renting meant if you went into hospice or had to be hospitalized the eye gaze or whatever was...
  2. T

    DIET and WEIGHT.

    Hi all. My consultant here in the UK says it is better to increase calories 20% as muscle twitching usually saps energy. I found that I actually put weight on during my first six months of action . I started to try to drop some of that excess 20LBS with a healthy liquid fast ( Teas, Bio...
  3. M

    Reflux or what?

    The last week or so my PALS would have some coughing after finishing a gravity tube feeding. It seemed as if some formula was coming up by reflux and causing him to cough. It was brief and would resolve. I made sure he was at 45 degrees at least while receiving a feeding and for 45 minutes...
  4. D

    Confusing symptoms, please I'm very anxious

    Hello there, I'm really sorry to bother everyone here with this, I have really conflicting thoughts on this. So I'm 26 year old and recently (1,5months ago) finished med school, after I wrote my last exam I started to have a twitch in my thumb, it felt weak and strange, since I knew what it...
  5. Q

    Feeling guilty

    Hi, My mother has als and she is in her late stages. Is it wrong to think that i want this to be over? I just feel so stressed seeing her like this and I am tired and I just want to continue my life. I have a 5 month old baby and a wife and I feel my life is put hold on. I just feel guilty...
  6. T

    Question about life if a cure is ever found.

    It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...
  7. T

    Muscle Fatigue before failure?

    Hello, Age: 33 Male I found this forum as many others have, researching symptoms that lead to possibility of ALS. I appreciate all help with my concerns, my anxiety has been through the roof for the past week. A place I've never been. My concerns: In Feb/March 2018 I started noticing two...
  8. Signe

    Frustrated and still waiting for answers

    Well I can't believe I came back to this forum but after 6 months I'm still without symptom improvement. I haven't been diagnosed with anything. I gave my heart to these symptoms being a stress reaction and or anxiety, I realize stress can cause a lot, but after 6 months nothing is better. If...
  9. M

    Trouble getting a neurologist referal

    Hello all, Let me tell you my whole story... I started having pain(muscle ache) in my shoulder March first. Went to a redicare Dr on March 11th and let the Dr know the muscle pain is also in my arm as well as shoulder and moving around. Was told this was myalagia and to follow up with primary...
  10. R

    Update re: Previous Thread

    https://www.alsforums.com/forum/do-i-have-als-als/41324-just-need-relief.html The above thread is my original thread, which has since been closed. Hi, I posted about two months ago with concerns that I had re: twitching and other ailments that were not indicative of anything worrisome. I saw...
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