wheelchair

  1. G

    Wheelchair carrier

    We are looking for a low cost alternative to a wheelchair van. This would be for occasional outings where I want to use my wheelchair instead of a walker. Since we already own a pickup truck (Toyota Tacoma), we have been looking at a carrier that attaches to the trailer hitch. Does anyone have...
  2. bkite

    Smokers and ventilators

    Yesterday my RT from from the local oxygen and Trilogy supplier, went to exchange a refurbished Trilogy 100 for mine. Mine has over the number of hours before overall. After the " new ventilator" was fastened to the back of my wheelchair and the settings were being input to match mine, I asked...
  3. A

    High Anti-GAD numbers in ALS?

    Hello, I am writing on behalf of a friend of mine who was diagnosed first with Stiff Person Symdrome (1/2018) and now this week has been given a new diagnosis of ALS. Symptoms began in August of 2017 and have been swift in progression. Frequent falls, cramps at night (or sensation of needing to...
  4. MarieLaure

    The bar tender downstairs

    Going through hard period with my father’s progression speeding up. I arrive at his place late at night loaded with bags for a stay with him. Jeff, the bar tender stops me and says “ I don’t know you but I see you. How are you ?*» I say he is so so. He insists «* how are YOU*» Then he says if...
  5. L

    Panicking...how do I do this?

    Hello I am new here so Im grateful to anyone who takes the time to respond. I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble...
  6. Tippenme

    Newbie--need help decoding respiratory numbers...

    Hello to all: I am a newbie and was diagnosed after a year of symptoms in June of 2018 at OHSU here in Portland. (I had previously gone to Mayo in Rochester and was badly misdiagnosed...a story for another time perhaps.) I have been reading through the forums and am truly blown away by the...
  7. swalker

    Adventures in Yellowstone

    We had a wonderful month-long trip to Yellowstone. We arrived on May 20 and departed for home on June 18. It was a long and wonderful trip. My two sisters joined my wife and me for the last couple of weeks of the trip. My friend Greg and my adorable 7 year old goddaughter were there for the...
  8. S

    Slow progresser (long post)

    Hello to everyone, this is my first post, after spending a lot of time browsing the forums. It seems like a very supportive place. I've noticed in these groups as well as in the local ALSA support group we go to, that some people are dealing with the stress and demands of a fairly rapid...
  9. Kristina1

    how to operate pwc without hands

    Sorry for all the wheelchair posts. it's a whole new world and very overwhelming to figure out. My doctor put in a referral for the PT wheelchair eval but as my hands continue to lose function im wondering how can I operate a pwc once i get to the point where i can no longer use my hands at all?
  10. S

    I'm Hoping to help veterans with ALS

    My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...
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