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Going down to West Roxbury Mass to the VA Hospital be admitted for another pump eval and VA intake. The VA is bring in a Specialist on spasticity to look at me, keep your fingers crossed I really want the pump. Past the last test, but right after passing the test the doctor decided he was not...

A month ago, my dear husband Tom passed after a 7 year fight with ALS at the age of 68. I haven't been on this site in a few months because things got very hard towards the end. He began to really weaken over the summer, developed aspiration pneumonia on September 10th, spoke for the last time...

The ALS Association Announces Initial Commitment of $21.7 Million from Ice Bucket Challenge Donations to Expedite Search for Treatments and a Cure for ALS Additional $12.5 Million in Matching Gifts Secured Bring Total Commitment to $34.2 million Washington, D.C. (October 2, 2014)—After the...

My beautiful wife lost her battle with ALS just about a year ago. We have a good amount of equipment and some supplies that have been stored away. I would love to be in a position to donate everything to someone in need, or even our local ALS association chapter, but our finances took a major...

Good afternoon - First, I appreciate all of the time and effort and sacrifice all of you put into these forums. Thank you for all you do for those with this disease, raising awareness and supporting each other and yourself and your families. I've been dealing with some disconcerting symptoms...

"Many have asked why these two workers received the experimental drug when so many -- around 1,600 -- others in West Africa also have the virus. The World Health Organization says it was not involved in the decision to treat Brantly and Writebol. Both patients had to give consent to receive the...

Got eye gaze dynavox a month ago. It takes a lot of practice but I am getting better. It just take time. I name everything my feeding tubes name is Peggy Sue, my DPS is Sparky and my dynavox is May West. The she bats her eyes for those of you who may not know who May West is .

My name is Ellen. I've had ALS symptoms since 2005. It began with weakness in my right hand and slowly spread throughout my body. I was diagnosed in May 2007 - at that time I was mother to 5-month-old twin daughters and a 3-year-old girl. My husband had to take parental leave because I...

Our CoughAssist mechanical insufflation-exsufflation machine was used for approximately 3 weeks and is in perfect condition. It comes with a used adult small mask, two brand new filters and a wheeled stand. Asking $1500 obo. I am located just west of Toronto. If interested, please contact me at...

Hey everyone! My name's Ken, and I'm new to this forum. My father was diagnosed with ALS this past December, and it has definitely been a life-changing experience. I am a new graduate of the University of Pittsburgh and I'm currently involved in the Western PA chapter of the ALS Association...