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  1. kellykago

    Message Banking

    My speech therapist gave me information on Message Banking at messagebanking.com so that I can preserve phrases of my speech to use later, since my speech is changing. The website doesn't seem to be working. Has anyone else tried to use this website? Any ideas on how to access this so I can...
  2. S

    Lotsahelpinghands.com

    Has anyone heard of or used Lotsahelpinghands.com? It was suggested to be by an RN that volunteers to help PALS and CALS. She is a wonderful resource. I am hoping this website will be as well. My best friend is going to coordinate resources by emailing when we have added things Cliff and I...
  3. rose

    Contest

    I almost posted this in the Tips Tricks and Gadgets forum, but decided to stick with this one. Starting Tuesday, you can enter a contest to win a playtex ventaire bottle and the adapter tip which lets the bottle be used for gravity feeding. The advantage of this bottle over using the...
  4. B

    Confused

    Hello everyone, Thanks first of all for your commitment to this website. It is a very valuable resource. I am hoping you can help solve some confusion as my partner struggles through some anxiety surrounding some neurological symptoms. Many websites will say that early symptoms of ALS...
  5. M

    RCH4 Drug stopped by Dr. Bedlack

    Moderator's note: This topic was explored some months ago in this thread. dr bedlack designated eric valor as the lead investigator for the rch4 review on behalf of alsuntangled (alsu). a review for alsu should be conducted in the following manner, according to the alsu website (2 minutes into...
  6. M

    Brain-computer Interface (Brain-machine interface)

    Hello All, I'm wondering if anyone has any experience with, or information about, brain-computer interfaces? I'm referring to the caps with electrodes on them, worn in order to control computers or other devices using your brainwaves (no movement. Perhaps it's a pipe dream, but it seems like...
  7. rose

    The Lopez Valve

    Hello PALS and CALS, I recently ran across the mention of a "lopez valve" on another website. I was curious, ordered one from Amazon, tried it out, and wrote a short review of it on my blog. There seems to be very little talk of it here on the ALS forums, when I did a search, the only thing...
  8. rose

    Hello everyone!

    It has been a long time since I dropped off of this forum. The losses of those I'd grown close to got to be too much for me. I grew to feel overwhelmed with a kind of "survivor guilt". And, it breaks my heart now to see who has passed, without me knowing. However, it was good and much...
  9. Nikki J

    Another caregiver forum

    Of course we are the best but this is an open forum. I happened across a caregiver only private forum on the brigance brigade foundation website. Look under Chanda's corner. Chanda is OJ's wife and they are great people. ( I have not looked at the forum it is only for current primary CALS)
  10. N

    I have read the stickies

    Hello all, I have read both the stickies and they were immensely supportive. My symptoms match those which both stickies suggest are not indicative of ALS. I would say what first brought me to ALS fear was a twitch in my shoulder just over a year a go now. I entered the dreaded Dr Google and...
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