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1 Month Warning. That's what I just gave the family, via the private family FB page. One month of no quality, coherent time with Matt and we will be taking him off the vent. He was clear headed about a week ago just long enough to tell me that crazy communication doesn't count, so when he's...

Just wanted to check in. I had my follow up appointment with my neuromuscular specialist at OSU on Wednesday of last week. It was a completely different experience than I had the last time. I didn’t see the medical student, only my doctor, which I think made a huge difference. He actually...

I went back to my original post but it was closed so I am opening a new post. I received my EMG today and was told that I do not have also based on my readings but I have BFS. Appreciate everyone listening to me and wanted to post that you all were correct and Thank you for listening.

Since Medicare open enrollment is happening through December 7, just a quick note on some 2019 changes that could affect your decisions. It is always worth looking at what you have vs. the competition every year. Not all counties have MA plans available if you are <65 or at all, but many do...

I read about Requip and it seemed like a good gamble so I got my PCP to write me a script for it. I really wanted to get Ibudilast. I am not a chemist, but it seems that Requip (C16H24N2O) and would also act similar to ibudilast (C14H18N2O). What opinions does anyone have?

Hello, I have been on this forum for some time now, but I recently just joined. I know I suffer from health anxiety, a panic disorder, and long before everything else general anxiety. I recently lost 3 loved ones this year, but death isn't new to me. One of my uncles died of complications in his...

Hello I am looking for some guidance and help for my husband right now. We are in the process of trying to get a diagnosis or at least pointed in the right direction. About 5 weeks ago he began to feel some pain in his shins on both legs, the right side felt a little more tender to touch mid...

I've been lurking here for about 6 months, mostly to be able to say, "oh good, that doesn't sound like me!" But, as of September 24th, I became an "official PALS". Not a club I wanted to be part of. My symptoms started with excessive yawning, and the inability to sing. Like I sang a solo on...

Hi all, Just wanted to post a new update. I meet my neuro the other day and he did all the tests: reflexes, walking on heels and toes, look into my eyes with flashlight, holding my arms in front of body. Did no strenght tests at all and that is concerning since on of the symptom is my shoulder...

Hi all, I just wanted to share a recent journey about my ALS scare and how the best thing to do is seek out a medical professional right away if your concerned. I feel like my story will resonate with others here lurking on this forum. Unfortunately, a 40-something neighbor of mine was...