walker

  1. M

    Newly diagnosed, need advice

    My husband was diagnosed with ALS Jan 2018, onset symptoms started Feb 2017. He first had cramping in right calf muscle then foot drop. His right leg started wasting away shortly after and he lost 40-50lbs within months. He began to have trouble breathing in Aug 2017 just 7 months after onset...
  2. A

    Falling apart - a bit of a rant

    It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand. I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
  3. Lkaibel

    A Long, Slow Downhill Roll...

    My husband called me up today at work and said that he was not going to be able to let our housekeeper in because no matter how he tried he would not turn the doorknob. He DID end up getting the door open. A Life Alert is coming our way, and that will have a key box on the front of the door and...
  4. H

    Questions about contradictions Re: ALS

    Hello everyone! I am a 21-year-old Caucasian male with no history of ALS in my family. I have an anxiety disorder, along with hypochondria - I am reluctant to say that latter but know this is pertinent to disclose. A week and a half ago, I felt perfectly fine, no symptoms of ALS. Then I noticed...
  5. M

    My father

    My father passed away last Wednesday surrounded by his family. Despite all the misery that ALS inflicted on his body, his last few days were very peaceful. His condition took a drastic downturn in November, after a couple of cycles on Edaravone. We will never know if this was a cause of his...
  6. R

    Progression.... ?

    I was diagnosed Thanksgiving 2017. Most problem with balance and gait. Walking with rollator walker. They say the problem began in hips. I have great difficulty rolling over or getting out of bed without pulling myself up with a rail! Once I pull myself to sitting position, I can use rail to...
  7. R

    Newly Diagnosed at Mayo Thanksgiving 2017

    I was diagnosed Wed before Thanksgiving 2017! I went to Mayo believing I had NPH (normal Pressure Hydrocepheous) I had been to 4 local Neurologist and all felt it was NPH, but because Spinal Tap and draining 40 CC of spinal fluid didn't help, we ere playing "stump the doctor" EMGs on Legs were...
  8. Lkaibel

    Today

    Today, I am again confronted with the simple fact that I cannot believe that everything we have been to each other is coming to an end. Maybe it’s 8 months, maybe three years but we have already lost much and we will lose more and then I will lose him. I think of the things I will do after...
  9. S

    parent with bvFTD now falling

    Hi Everyone-- Hopefully I'm posting this in the right place. About 6 years ago my father-- longtime academic, loving husband, stay-at-home dad, and just all-around exceptional human being-- started acting...weird... at times. "Insidious" is probably the best word to describe the onset. It...
  10. S

    Mom with FTD and ALS

    Hi all, my name is Mari and I'm Finnish. I lost my mom to ALS on Nov 17th. She had an Alzheimers diagnosis on July 2017 as we took her to memory tests as she didnt seem to remember everything as normal and did not cook or do gardening anymore nor cleaned the house as usual. She was diagnosed...
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