volunteers

We need an active PALS or CALS for every state to join us in the effort to get compassionate early access to new drug therapies for every PALS. Then we can form a network of activist volunteers who will see this dream into reality. ALS Treat-Us-Now! is recruiting one volunteer, and one...

Hello pals and cals...were you turned down for one of drug trial because you couldn't pass the breathing test, or were diagnosed for too long? Try this, what have you got to loose? The ALS- Treat Us Now! Steering committee) is initiating a Pilot 1 initiative to allow early access to...

If you have ALS, so does your family. That is to say, ALS is a devastating disease which affects everyone involved. While living with ALS is difficult, living with ALS without the support of family and friends would be even more challenging. When my late husband Kevin started needing more...

12/16 update Corporate Citizens: Authorize and Make Available Compassionate Use Drugs for ALS Patients NOW!' Sent on: December 16, 2011 1341 signatures, 1243 recipients Thanks to everyone who has signed and then sent our (your) petition to many family, friends, and strangers for...

I just had the Dr order Hospice for my hubby. First diagnosis on Aug 30th this year .... to can't breath without the Bipap and can just barely stand or take a few steps. Hospice nurse is coming out on Sat morning... our 28th anniversary. Somehow I feel like I am giving up... I know he will...

Hi Everyone, I am writing to see if anyone else is aware of this new very promising clinical trial for ALS. I believe this could be the drug we have been waiting for all these years. Please contact your clinic or doctor to see if they are recruiting now for this trial. I would love to be in...

I know this was posted before but the VA changed the page. I think it is more informative. I will post the link in a follow up. You may know that VA provides benefits and services for Veterans, but did you know that VA also has a number of services designed specifically to support you in your...

Does anyone know the procedure of how the actual medication or placebo is distributed? Is the placebo every other volunteer, the last few volunteers, your age, or your current stage in the disease? Is it determined by the specific trial sothat each trial could be different? I have qualified...

Finished the first screening yesterday. Lots of blood taken and questions asked. Started learning how to change the dressing and administer the meds. My husband and sister will be the prime caretakers. I think they're more afraid than I am. And, although I am a little afraid of the catheter...

I have a wonderful group of people assisting my family through "Lotsa Helping Hands". A different person brings us a delicious meal once a week...lovely! My dilemma...the same three families do the majority of the cooking. I know they will protest but I must figure out a way to pay for, at...