voice

  1. G

    My Story - input appreciated.

    Hello. I would like to start by stating my true admiration for all on this forum. You are all so courageous and inspiring. Thank you for sharing your valued thoughts and perspectives. I am very worried about having als. Here is my story. I have twitched intermittently for years. In April I...
    • Gretz
    • Thread
    • als atrophy back bulbar choking clean emg clinical diagnosis emg exercise family fasciculations fatigue food heart muscle neurologist questions second opinion speech stiffness story swallowing tongue twitches twitching voice wanted weakness worried worried about als worry
    • Replies: 23
    • Forum: Could this be ALS?
  2. Kristina1

    need support, laryngospasm

    I need to share this with people who know what im going through. I am very shaken up after worst laryngospasm to-date last night. I have been getting them over the past year, and this one was ten times worse than any ive had before. I went to breathe in and hit a rock solid wall. I tried to...
  3. T

    Hi all. TIANDB

    Hi i was pointed here by Nikkij . The Introduction link should be top of the page IMHO. I left the Fire service here in the UK aged 50 in 2012 I had enough in my pension pot to get by on and I had a sweating problem, I thought this might be due to job stresses and would clear up when I...
    • TIANDB
    • Thread
    • als diagnosed diagnosis exercise father foot introduction muscle muscle twitches neurology problem respite twitches voice
    • Replies: 10
    • Forum: New members
  4. R

    ALS FDA Trials Guidance Opinion Questionnaire

    This questionnaire was written by individuals with ALS. The results will be used to relay the needs and opinions of People with ALS to the ALS Association and FDA in regards to the recently issued FDA Guidance Document. Please make your voice heard. It will only be open for a few days since...
  5. M

    19 year old terrified

    Hello everybody. I am a 19 year old nursing student going into my sophomore year. I wanted to start off by saying my heart goes out to everyone dealing with this horrid diease. You are all such strong amazing people and my mother and I are looking to donate to the community and would like to...
    • Ml1212
    • Thread
    • als back brain clinical constipation cure emg eye fear heart life mri muscle muscle twitches neck pain neurologist pain reading scared scared of als spasms student symptoms tests twitches voice wanted weakness work
    • Replies: 15
    • Forum: Could this be ALS?
  6. JimInVA

    Controlling The Television

    Our TV setup is somewhat complicated. We have Cable TV (Verizon FIOS) which feeds into Verizon's Cable Control Box. That feed is then routed to the Onkyo Audio Receiver (which allows me control of various other sources... ROKU, BlueRay, Bluetooth, etc.). I have the Universal Remote Control...
  7. G

    Newly diagnosed

    I was diagnosed by a neurologist about 5 weeks ago after two EMGs and MRIs confirmed his suspicions. I'm not sure how long I've had this as I was in treatment for Lymphoma in 2014 and never fully recovered from Chemotherapy. Now that I have done some research, I think I was passing off some...
    • Grhbr
    • Thread
    • advice als book breathing caregiver clinic diagnose diagnosed fatigue feeding female hospice neurologist newly diagnosed problems research support swallowing symptoms symptoms of als tests travel treatment voice walker
    • Replies: 21
    • Forum: Newly diagnosed
  8. T

    Dysphagia for months

    After er visits and ENT specialist twice , possibility of gerd being cause is possible but unlikely. It's literally been 6 months, started as lump and tight throat, now its more of not even being able to feel the food once my food leaves my mouth and feels as though my tongue isn't pushing food...
    • Truss
    • Thread
    • back bulbar choking dysphagia food lump onset swallow swallowing symptoms tongue voice weakness
    • Replies: 12
    • Forum: Could this be ALS?
  9. D

    Possible bulbar?

    Hello all. New here. Don't know exactly where to start so I'll try and give a bit of history before going into what's currently going on. Around 2006 I had a wierd tongue episode. It basically jerked very hard about 4 times and it freaked me out to the point I went to the er thinking I was...
    • DoctorLove
    • Thread
    • back bfs bulbar bulbar onset dry mouth emg falling immediately muscle new here onset pain swallowing symptoms tests tongue twitch twitches voice
    • Replies: 7
    • Forum: Could this be ALS?
  10. S

    Protandim

    I'm an "old one" in this ALS world. I've been living with this crazy disease now for over 11 years. It all started in 2007 with my left foot while speed walking my neighborhood. It stayed in my lower limbs until about 2013ish, but now I'm just getting to the point I can not type well, feed...
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