voice

  1. W

    Laryngospasm and atrophy

    First of all, I'd like to apologize for the post. I've tried to avoid it until now, but my worries are totally draining the focus of my life and I feel you can help me. I'm a man, I'm 28 years old and I live in Spain. Just over two months ago I started having a cough crisis that did not end at...
  2. V

    Worried/Scared

    The first thing I want to say is thank you for having a place like this, where people can go to voice their concerns. For that past 3 months, I've had disequilibrium. If you don't know me, you can't tell, but I feel off balance when I walk. It becomes especially pronounced if I stand with my...
  3. 1

    In need of advice

    Hi. First of my heart goes out to all who are affected by such a terrible disease, friends and family members included. Now, I have been having an array of symptoms for sometime now. I am currently awaiting my appt for my Emg and I am a bit nervous. I would appreciate any advice about whether...
  4. L

    Should I worry?

    Hi, I have read the thread with the symptoms and I wouldn’t have posted here, if it weren’t for my knees that are kinda bothering me – some vibrations, not exactly twitching which probably wouldn’t scare me because I would say the cold is to blame ( I sleep in just a shirt and it is kinda cold...
  5. D

    Voice Banking Anything New?

    I am considering voice banking. All of the threads seem to be closed. What are the latest developments? What have you tried? Is it worth it—your opinion please?
  6. BlsdMama

    And I'm back...

    Not without a fuss, mind you. Mayo found an antibody (glycine receptor antibody) and wanted to try several treatments for limb variant stiff person syndrome. Alas, nope. I felt the fourth trial improved my balance (quite a lot actually) but they can see no improvement, plus, everything has...
  7. T

    Diagnosis At Last

    Hello everyone. My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him. He started to talk slowler than usual in January this year, and gradually got worse over the months...
  8. J

    Voice Access App for Android

    I came across an blog post about the Voice Access app for Android. I downloaded it and tried it out on my Samsung tablet. It's very easy to use and would really help PALS who cannot use their hands, but still can use their voice (like my DH). I'd add the link, but I know that can sometimes...
  9. C

    Swallowing issues and muscle tiredness

    Hi! I am a 31 year old woman who has been experiencing twitching and muscle tiredness for a while now. It started with some strange symptoms after the birth of my youngest son 4,5 years ago (vertigo, paresthesia, raynauds muscle tiredness and swallowing issues). They found a positive ANA and...
  10. scaredwifetx

    Steve's flying free

    I have shared so much here over the years that I feel that this part of journey should be shared here before anyone or anywhere else. I hope that this helps a CAL somewhere. Steve was very anxious last night and today about the mask coming off and his breathing. He was fighting the meds meant...
Back
Top