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Hello, I would like to start out by saying I'm a 5'6 190lbs 13 year old male. I have IBS C ( Irritable Bowel Syndrome with Constipaton ) I take two doses of Mira Lax a day with a Probiotic and Fiber Gummies. I've been worried about having ALS for about 6 months I believe and really need your...

Our motorcycle club went on a ride last Sunday to make a tribute to 9/11. It turned out kindof cool and displays the beauty of Utah. The weather was fantastic for the ride, and I was so happy that I went. It is getting hard for me to mount my trike and ride long distances. The ride was about...

Hello all. I will make this short. I have been dealing with fasiculations and profound fatigue for a while now. For the last 7 months I have had continuous fasics inside my arm above the inner part of my elbow. If I flex the muscle the fasics continue to go. Also pain and weakness. Was working...

They moved my EMG up from September 19th to tomorrow morning ! Not as lucky is that my involuntary finger movements came back today. Slightly different than before but similar feeling. I'm going to attach the video as I managed to catch a few.. Can someone please tell me what these would be...

Hello all, I have read both the stickies and they were immensely supportive. My symptoms match those which both stickies suggest are not indicative of ALS. I would say what first brought me to ALS fear was a twitch in my shoulder just over a year a go now. I entered the dreaded Dr Google and...

People often ask how my wife, Darcey is doing... and I'll typically answer "She's holding her own pretty well!" I honestly don't mean to be "put offish" with that answer... its just difficult to describe where she's at in her ALS journey or how exactly we work together each day to "keep...

Hello everyone, When I first joined this amazing group of people there was so much that I just read. I grabbed on to each and every thread like it was the oxygen that I needed as a caregiver to breathe. One piece of advice was to "bank my PALS voice" I heard it and I tried (though not too...

Hi everyone, Hope y’all are doing well! I’m starting a thread to create a space for a project that I’m working on with students at UC Davis and Greg Tanner, a PALS that works with disabilityreports.org. The goal is to create new adaptations for a lightweight pedal-electric all terrain...

Currently being used in Japan. Mitsubishi Tanabe Pharma Corporation has submitted a New Drug Application. Mitsubishi Tanabe Pharma Submits New Drug Application for Edaravone to Treat ALS in the United States This is also known as MCI-186, and is being worked by Treeway.

Over Memorial Day weekend my kids and I all flew up to Maine to spread Lonny's Ashes. He was raised in a small town on the coast and considered that his home so I decided that would be a good place for him. I rented a house in the town he lived in and we had a lovely time walking around and...