vent

I have had als for 6 years and vented for almost 3 years. I made this for several reasons : physically (i a basically paralyzed from head to toe), quality of life, financial, insufficient nursing, burden on my family, ready to meet my maker and make me whole again. I am at peace with the...

Here's my vent of the week... I find myself being sensitive to some things that in the past would not have bothered me. I don't know if it is the sleep deprivation, the worrying or whatnot, but listen to my story. My sister in law has been very supportive throughout my PALS illness. If...

We've started our Spring travel. I have mixed emotions--excitement---fear---exhaustion (yes, it's an emotion too, as we all know)---happiness that he still wants to do something. Yesterday we drove three hours to Hampton, VA. Our first stop was his friend's jewelry store where Matt picked up...

My PALS was diagnosed Sept 2011. Prob had it a year earlier. Started in his hands and was slow moving until about 2 years ago and it went crazy. He is paralyzed except for his neck and a little shoulder which still allows him to drive his power chair. He has always had a really good outlook...

I want to start by saying what a great group this is for someone like us. I have been reading these boards for awhile and find it remarkable how knowledgeable and caring the users are. For that I thank you. This is my first time posting, and I tend to get a little long winded at times, so...

Hi all, firstly I have read the sticky in this section, but I just have a few brief questions. I'd like to thank anyone who takes the time to read this in advance, as I'm letting these concerns get the better of me. I'm a 22 year old male, living in Ireland. In the past summer I lived abroad...

Well it's time to vent again. It seems like there is some appointment of some kind every day. Thank God that I only work occasionally. I don't know how you people with FT jobs do it all. My PALS keeps FB messaging me for this and that. I can barely take a shower or eat some days. Then I have my...

I am not going to spend to much time and energy on this because it's not worth it, but just a brief vent here if you cafe to read further. Since nearly the day of Brian's Dx, I have done a Blog on Blogspot that was called "Life, Love & ALS". I have posted maybe twice a month. I think there has...

Hi everyone. I was just diagnosed on Friday. I'm 31 years old, married with three young children. My husband and I had let our respective parents know that ALS was suspected, and when I received the diagnosis we gave them that update. Over the weekend and through today I have been getting...

Hi All, As most of you know we have been at this for a very long time. You may have been told that ALS will not affect your bladder/bowels. That may be the case if your PALS goes quickly, but if you choose to vent and they stick around longer than the suggested time frame, you may end up...