vent

  1. L

    Jevity via Feeding Tube

    My sister is having an issue with vomiting. I believe it begins with saliva pooling which caused coughing, then gagging which sometimes leads to vomiting (about 3 - 4 times a week). She is taking 2 cans of Jevity via feeding tube around 1 pm and then 1 or 2 cans in the evening around 6 pm. This...
  2. F

    i'll drink to that!

    Mother Superior called all the nuns* Together and said to them, 'I must tell you all* Something. We have a case of gonorrhoea in the* Convent.' 'Thank God,' said an elderly nun at* The back. 'I'm so tired of* Chardonnay.'
  3. N

    I read a lot about trach, but still have questions if you could help...

    First, I know I started several separate threads, and I wonder if that's okay. Or should I just start one and stick to it? I start a new thread with each new question, and I'm afraid I may have more questions, and more each day... My dad's doctor recommends that he gets a trach together with...
  4. Nuts

    Too Much Gas

    Hey peeps, I need your collective wisdom. We are in the hospital, day 9 post trach/vent. They have had him on a constant trickle feed with the same formula he was tolerating at home (2 cal) , and his stomach and colon are filling with gas that won't move. His stomach gets so distended that he...
  5. A

    Falling apart - a bit of a rant

    It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand. I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
  6. L

    Have I done all I can??

    Hello everyone. This is all very new to me even though I feel as though I am getting a crash course in ALS care. My beautiful mother was diagnosed with ALS in October. She is 77 and lives with me. Her progression has been so fast I am having a hard time keeping up with all she needs. I have...
  7. H

    Young Man Panic Ring Finger

    Good Morning ladies and gents, I am hoping to shed some light on something that really is baffling me as i have been worried for nearly 3 years but have not really come to vent or ask any questions. i am 26 and an ex soldier. it starts in my right ring finger when i pinch my thumb and ring...
  8. worrieddaughter77

    Some updates and decisions

    My dad is declining very fast. As new changes happening I would like to ask you for an advice/comments on the following points: Fatigue: My dad is very weak. He almost can't walk or stand up from a chair anymore. Taking him to the Dr or clinic is such a draining task on him. Just getting an...
  9. wishmobbing

    Forum refugee from Germany

    Hi folks! I have a good feeling about finding this forum! I already found a LOT of helpful information in the german ALS forum, but there's not a lot of people around "living" in the forum, spending time with each other. And that's what I could use, a community where everybody know's what a bad...
  10. B

    My husband cried today

    For the first time since his diagnosis in June, my husband broke down. He has rapidly lost his ability to speak, and he was trying to tell me something that I just couldn't grasp. He tried to write it down but could only write one word that made no sense to me at all. He can't put his...
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