van

  1. A

    Falling apart - a bit of a rant

    It's been a rough couple of days and I am really struggling. I need to vent a bit, and I feel like this is the only place where anyone will actually understand. I had to call an ambulance to take my PALS to hospital on Friday night. He's been constipated on and off for a couple of weeks and we...
  2. 2

    New and need guidance

    My dad was diagnosed with PLS a couple of years ago. For reasons I don't need to go into, his current living situation is going to change very soon, and my sister and I intend to have him live in our homes on a shared basis. I live 5 hours away from my dad and my sister's family, so...
  3. Lkaibel

    A Long, Slow Downhill Roll...

    My husband called me up today at work and said that he was not going to be able to let our housekeeper in because no matter how he tried he would not turn the doorknob. He DID end up getting the door open. A Life Alert is coming our way, and that will have a key box on the front of the door and...
  4. T

    Ground Hog's Day

    Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011. The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...
  5. D

    Van features that you have found helpful?

    We are looking for an accessible van. What specific features in a van should we be looking for to make things easier, or what have you found helpful? Passenger seat that we can transfer into? Manual or power ramps? Is side or rear entry better? We also need to have a row of seats for our kids.
  6. Lkaibel

    Game Changer

    I am beginning to think Brian is going to go a LOT further with this than we previous thought/planned. That is great news in a lot of ways, but also a game changer. Since things at home have thus far been a lot easier to modify than I had thought earlier on, and I am confident we can keep...
  7. N

    Insurance for Spouse

    Good Morning, Giving this a try. A little background for my dad: He was diagnosed early months of 2017, receives Social Security Disability. Medicare A and B, recently enrolled into Supplemental Insurance as well. My mother depended completely on his income when he did work. My dad can no...
  8. Buckhorn

    What must physician write on script for Roho cushion & assistant driving controls?

    What must physician write on script for Roho cushion & assistant driving controls? We will be going to the ALS clinic again soon. Since my husband can no longer effectively weight shift in his chair & lacks the arm strength to lift himself up to reposition, we will be asking for a script for a...
  9. J

    Van for sale

    2011 Toyota Sienna for sale in the Lansing MI area. The van is in excellent running order. Nearly new brakes, tires, battery, wiper blades, charcoal air filter. The three recalls have been addressed. The price is certainly negotiable. If you would like to see more about it, my son-in-law has...
  10. Bestfriends14

    From one leg to the next?

    Hello all, My husband has left leg onset and when we got the unofficial diagnosis on May 12th by the neurophysiatrist, the EMG showed the ALS is in his right leg, too, although he has yet to show symptoms. My question is, if the EMG picked it up in his right leg back in May, when would the...
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