vacation

Hello all. First let me thank any one who took the time to read this. Especially those diagnosed with this awful disease. Prayers sent your way. I've been a lurker on here for a few months now. Finally grew the courage to post myself. So here is my story. I will start it by saying i have not...

I am refreshing my browser and I only see posts that are last dated 7/5...except for one in memory of which says today...is everyone on vacation (I guess if you are, you won't respond)

Hi Everyone out there, This is the first ever forum for me so I'm learning as I go. I truly wish it wasn't but that's what we've been dealt. My husband of 20 years is only 54 and was diagnosed in May this year. We had the second opinion of course with UCI of Urvine in Ca, the best in there...

Hi All, Well, as my title suggests, I am about to head to Seattle for the Spastic Paraplegia Foundation's conference on HSP and PLS. I am excited about meeting other people with these disorders (mine is presumably HSP), but I am also nervous about seeing what "the future" might look like for...

long story short, thought this was a work injury with foot drop after a fall back in Feb of last year. Leg continued to be weak but manageable. FF to a few months ago, feeling weaker and having twitches. Diagnosed with 2nd opinion just recently. I feel like this is going very fast--I just told...

Hope these pictures post o.k. My good pictures are on my wife's Nikon and I don't have a cord to download them to my laptop yet. These are just from the iphone. The trip was great. Just about 3 hours from home to the Canaan Valley Ski Resort near Davis WV and the Doly Sods Wilderness Area...

One of the worst jobs I had to do after being diagnosed was to tell my children the bad news. By the time I knew, my voice had been impacted dramatically. I sounded like I was drunk. That wasn't a real concern to me....my big problem was that during periods of emotion, something closed down...

Hello my friends, Well, I did it! I went on the cruise with my family and Hubby stayed home with his brother for 9 days. It was an incredible get away from the monster. And much needed quality time with my 2 boys. I felt like me again for the first time in a really long time. So glad I went...

I can't believe that I am posting here, I have been reading threads and worrying about ALS for months. I am a 33 year old female. In October 2014 I was experiencing extreme neck and shoulder pain, in addition to hand and arm pain that I thought was resulting from a writing intensive job. I was...

Hi everyone, just came back from a lovely 2 and a half week vacation from the hospital (going to fire my travel agent lol) My baclofen pump catheter kinked or the pump malfunctioned and I went through severe withdrawal symptoms. The pump's alarm only went off once a day and it was so low it...