vacation

  1. L

    Scared and confused

    Hi everyone :) Thanks in advance for taking the time to read and give any insight you might have. It's truly, truly appreciated. I am experiencing some symptoms that have me scared about ALS. Prior to the ALS concern, I have been seeing a neurologist with a suspicion of Lyme disease (and have...
  2. H

    on vacation with ALS

    I live in the Netherlands. Many good places for a perfect vacation here. Are there simmilar places in the USA ? example: can a wheelchair accessable room be booked in every hotel ? can a daycare nurse be hired ? Lets start a thread here.
  3. T

    Summer cold

    My kids got this viral sore throat, cough thing last week, now I have it. We are went to the MD to make sure it wasn't strep. Just a viral sinus cold. I thought I was getting better, but lost my voice this weekend, it's slowly coming back. But now I'm coughing like crazy and congested. I am the...
  4. T

    Eating/g tube

    My husband shouldn't be eating anything by mouth at all, and have only formula tube feeds. He refuses them. I try and he's like no,no. But he chokes every single time he eats anything. He thinks he can just eat a burger,bun, toppings. Or tacos, all. But he chokes and food gets stuck where we...
  5. abnorm

    Pam's back....as in hospital

    My PALS wife Pam is back in the hospital....this time it's serious....Remember we were here 18 months ago with an ALS diagnosis....thread titled "Admission Charge Too High" I've been lurking for a few weeks..... expected to post on here and talk about an Outdoor/Shower Spa I built...
  6. S

    Watching the Struggle

    My PALS and I just returned from a very nice vacation to Nashville Tennessee. While we had a very nice time, it was so difficult to watch my husband fight for every step. He took his first tumble and tripped at the airport, luckily he was able to catch himself. So scary knowing that any time...
  7. M

    Vacation

    First post - does anyone have vacation ideas? Our family has always done beach vacations. My wife is looking into a cruise. I'm concerned with her lack of mobility and difficulty eating, it could be rubbing it in her face. Isn't one of the main attractions of a cruise all of the food? I was...
  8. C

    Regeneveda stem cell transplantation

    My MIL is about to postpone her dream vacation to instead spend 50k on this facility's treatments, anyone know if it is legit as its a plastic surgeon in Beverly Hills with no reviews on their ALS treatment... I worry shes gona regret not doing the big vacation in favor of spending her time and...
  9. A

    Travel

    We are trying to find a vacation spot that is not only handicap accessible but has a toilet with a built in bidet/washlet. At this point the person we are accommodating refuses to allow anyone to help him with this task and it allows him some privacy and dignity. We are looking for a resort or...
  10. A

    Soft Palate doesn't rise Symmetrically

    Hey Guys, after months of reading in silence in this an some other Forums, comparing my case to similars, i feel like i have to share my own story to get some advise. At first let me apologise my spelling and my grammar. English is not my native Language but i will do my best to keep it...
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