update

It’s been a while since I’ve first posted here a couple months ago. Just an update, but my ALS fears have pretty much subsided. I do get the occasional twitches here and there but I’m pretty much back to my old self. This experience has taught me so much, and you all are such incredible...

Hi - I posted here last in April. https://www.alsforums.com/forum/do-i-have-als-als/38242-my-story.html I just wanted to pop in and at least update. I had a baby 5 months ago and it would be an understatement to say I still twitch. My god, do I twitch. But it has been 18 months of it - and...

Hello again. Apologies for the new thread, as my last threads have closed (titled "Strange Symptoms", and "Sanity Check"). I just wanted to give a final update and "fair well", as my EMG and NCV today were clean. I would like to extend a thank-you to all of the PALS and CALS on this forum for...

Dear All, Thanks in advance for your time it really is mucj appreciated. I wish all PALS the very best in the toughest of fights. I posted a wee while back but have been unable to post again on my thread. Thought I'd post an update and ask for some thoughts on symptoms if not too much...

Hello again Firstly I apologise for posting again but it has been several months since I last posted, the thread now being closed, and my symptoms continue to progress and leave me extremely worried. Since my last post I have had an MRI scan of my lower back which did not show any current nerve...

Hello everyone, Just a quick update. Still no diagnosis or name for what is going on with me. Does anyone know if Baclofen suppresses the reflexes. My reflexes are always changing sometimes hyperreflexive and other times normal. I'm a mystery what can I say. All I know is that the twitching has...

Dear Tech Support, Last year I upgraded from Boyfriend 5.0 to Husband 1.0 and noticed a distinct slow down in overall system performance -- particularly in the flower and jewelry applications, which operated flawlessly under Boyfriend 5.0. In addition, Husband 1.0 uninstalled many other...

I'll spare you most of the details, but twitching started in late November 2015. Started in left calf but rapidly progressed to all over (more in lower body though). Twitching has pretty steadily gotten worse over two years - more new twitches have come than old twitches have gone. I'm 42. I...

My husband decide to restart Pimozide nearly a month ago at the lowest dose. The side effects are still present (extreme fatigue, slurred speech, and excess saliva), however, at his last ALSFR appointment, he had not progressed at all. My husband is an extremely slow professor, but he has always...

Hi guys, first out I was trying to post in my origin thread but think its closed? If not please let me know. Anyway - I wanted to give you an update about my symptoms and how it have progressed, and hopefully some of you will reply with something that is reassuring because I can't let it go...