update

Hello again, to all the wonderful helpers here. Had another EMG yesterday and my fine Dr doesn't think my weakness is caused by ALS. She thinks I have a progressive muscle disease. Again she is recommending I go to Boston's Brigham and Women's hospital and see Dr Amato. He is a respected...

Some of you will remember last year I got vacuuming and mopping robots. Yes I still love them. The roomba however appeared to die. I thought it was the battery as it had looked like it was charging until suddenly it was completely unresponsive. It turned out though it was the charger even...

Update, they are ordering bipap for me now! Finally had that visit with pulmonary, supine fvc was 48%, down from 64% in June, so I won't have to argue with insurance after all. Oddly my upright fvc is unchanged and pretty good at 75%

Sorry to open a new thread, but nothing else seems to help. I know you told me to go to a doctor, but I physically have not had the time, and I'm going to another country for a few weeks soon. I still get back pain and my back is very sore. The muscles of my neck and shoulders also feel sore...

Thank you all very much for your help some months ago with my initial post. https://www.alsforums.com/forum/do-i-have-als-als/41898-am-i-overreacting.html Wanted to provide an update, as after weeks of not worrying about this, new symptoms have me quite concerned. I woke up one morning a few...

Had my Neuro appointment today few questions My reflexes were brisk and I showed positive Hoffman's and my left thumb was 4/5 everything else 5/5 when he told me that I broke down is this normal should I be worried?

Hi everyone. I wanted to provide an update on my symptoms, and my apologies for starting a new thread, as my prior thread has been closed. It’s now almost been a year since my symptoms started with the following issues: 1. Upper lip twitching 2. Pain down my entire left leg, calf and foot 3...

Since my previous thread was closed i want to post a few new things that have been happening to me. I have started having breathing problems especially at night when i wake up to go to mum who yells. Its like iam out of breath cant get enough air in my lungs. Also i get breathless when i talk...

Hi, I am just posting to help others with the same anxiety I’ve gone through this year. I posted before with flaccid in a week and lmn sign. I’ve seen many top neuros and they agreed that I had something going on but couldn’t find the answer. I also received great advice from senior members here...

Hello everybody. Thank you in advance to everybody acknowledging my post. I will keep this as short as possible as I’m aware many of you are busy dealing with other people’s queries. I’m back after posting a few months back. Below is a summary of my symptoms. I’m happy to report I took all of...