update

  1. M

    Update from doc

    Hi Guys, So I finally had my doctors appt today. She had no concerns whatsoever , she didn’t even refer me to a neuro . All she did was a neuro exam and I passed fine . She also ordered blood work but said that looking at my health I should be absolutely fine and she has no worries about ALS or...
  2. S

    Update

    https://www.alsforums.com/forum/do-i-have-als-als/43187-really-worried.html Hi everyone and thank you very very very much for your helpful information. Let me start by saying that I went to a neurologist (who specializes in EMG) and he did an EMG on me. He said everything looks better than...
    • sina1992
    • Thread
    • arm emg fasciculation helpful information neurologist update weakness worried wrong
    • Replies: 3
    • Forum: Could this be ALS?
  3. R

    Advice on symptoms - "weak" leg & twitching

    Hi All, Like many others on here, I have tried to avoid posting for as long as possible but would really appreciate your views on my symptoms based on your experiences. From what I have read, this site is a tremendous support and your are all very generous with your time. My summarized story...
    • Rojo
    • Thread
    • abdomen ability advice als atrophy brain burning diagnose emg exercise fatigue fingers heaviness ignore muscle muscle fatigue neurologist progression shaking stiffness story support symptoms twitching update
    • Replies: 21
    • Forum: Could this be ALS?
  4. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
    • jaclyn
    • Thread
    • clinical family free fvc hope improvement lung capacity medical night nurown speech swallowing therapy treatment trial update work
    • Replies: 90
    • Forum: Research and trials
  5. L

    Update from I feel so helpless

    Previous thread here. Good evening. Just got my second Emg. This one was done at a ALS specialist hospital accredited by the ALS Association. The Dr was extremely thorough and explained everything he did. It took about 2hours and he checked every where except my eyes! Conclusion was Mildly...
    • LUTHER
    • Thread
    • als diagnosis emg eyes hours symptoms test treatment update
    • Replies: 7
    • Forum: Could this be ALS?
  6. B

    Thank you all

    I want to say thank you to everyone for all of your assistance and comments. I'm sorry if we bothered any of you I understand that you are dealing with this illness as best as you all can and I admire your strength. If anyone cared for the update we saw our final neurologist and he said no Als...
  7. M

    CACNB4 mutation

    Hello everyone. I come back with an update about genetic test. They found CACNB4 gene mutations on my father with CACNB4 variants: NM_001330115,: exon6,: c.G518A,: p.R173Q, Chr2. That's a autosome dominant and I'm 75% able to carry a mutant. I'm currently waiting for my own genetic test results...
    • mrluu55
    • Thread
    • als back confused diagnosed father genetic mnd symptoms test update
    • Replies: 3
    • Forum: Familial ALS (FALS)
  8. Kristina1

    update on me

    I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
    • Kristina1
    • Thread
    • ability als book christmas clinic dying family fingers holiday hope hours insurance kids love media night pwc update wanted wheelchair
    • Replies: 15
    • Forum: People with ALS (PALS)
  9. B

    Not sure if I should be worried or not...

    Hello all. I’ll start off by saying Happy New Year and I hope everyone has a joyful evening. I’m a new member to this forum but I’ve been reading post after post as a guest. I’m a 21 year old female who has been having worrisome (to me) symptoms. I’ll admit to everyone I am somewhat of a...
    • bulldogmom97
    • Thread
    • age als arm back clinical emg eye father female fingers hope lead mental health mri muscle neurologist new member spasms supplement symptoms test tongue twitch twitches update weakness worried
    • Replies: 8
    • Forum: Could this be ALS?
  10. S

    Update - 12/24/18 - Extreme bulbar worries

    Hello everyone...I hope everyone is having a good Christmas season. I wish I could say the same. It's been almost 6 months since I have been here. Some things have gotten better and some a lot worse/terrifying. I was hoping to never have to come back here but my situation has dictated I do...
    • spacecowboy000
    • Thread
    • als back bulbar bulbar onset burning choking christmas clinical early eyes family food hope neurologist onset pain pressure scared speech swallowing symptoms tongue twitches update urgent weakness
    • Replies: 3
    • Forum: Could this be ALS?
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