trip

  1. M

    "Concerned" update

    In january (i believe) I posted on this forum after experiencing twitching in my legs for a few months. I had done a lot of "research", reading, and self-diagnosing. My grandmother died of ALS in the 80's. And so familial was within my radar. However, it would take a month for me to even see a...
  2. swalker

    Root Canal

    We just returned from our four-week long spring trip to Yellowstone. We stayed in the Madison campground (in our trailer) for 29 nights. It was a wonderful trip and I will write a trip report for it soon. One adventure we did not expect was the need for me to have an emergency root canal. I...
  3. S

    Breathing at higher altitudes

    My PALS and I planned a trip to Colorado. He is only on the Trilogy at night right now. He just told me yesterday his breathing took a turn for the worst. He is worried that he won't be able to breathe when we get to Denver? I know he could possible use his Trilogy if he couldn't breathe...
  4. J

    Overwhelmed, Sad and Tired

    I got my probable ALS diagnosis on May 24th, days before my husband and i would leave on an anniversary trip to California. We have shared this horrible news with some family and our kids. This is just overwhelming and I am so confused as to why we have to wait 6-8 weeks for a followup at the...
  5. S

    Road Trip from Oklahoma to South Dakota

    My PALS has wanted to go to Mt Rushmore. I am thinking about road tripping from Oklahoma to Keystone SD. I am not thrilled about driving through Kansas. Anybody know of must see things going north from Oklahoma? Maybe in Colorado, Wyoming, South Dakota, Montana? We are thinking about going...
  6. N

    Arm weakness and twitching

    Hello everyone my name is Nikki I'm 23 years old. It all started about a month ago when I was driving home I noticed my forearm felt tired, didn't think much of it. Left it for a few days before I looked it up on google and it came up with ALS at the very top. I started freaking out. I went to...
  7. F

    Life is GREAT!

    Hey, all y'all... there are ever so many new faces in here, and I truly am saddened to be welcoming you, considering the price of admission to this exclusive club. It has been awhile since I've posted, but wanted to bring you all up-to-date on the goings on. Life has been good, but the life of...
  8. Nuts

    The travel season...

    We've started our Spring travel. I have mixed emotions--excitement---fear---exhaustion (yes, it's an emotion too, as we all know)---happiness that he still wants to do something. Yesterday we drove three hours to Hampton, VA. Our first stop was his friend's jewelry store where Matt picked up...
  9. N

    Vacation update

    At Tillie's request, I'm starting this thread about my decompression vacation. Had this trip planned and tickets bought before I last fiasco. So glad I did. When checking in at home Brian is doing fine, his old self, like nothing happened. I did clear this trip with him before leaving and he...
  10. K

    Unsure what is going on

    Hello all. I am 45 years old and an RN. I have been doing home health for the past 5 years and have had multiple patients with MS, ALS and PLS. About 1 year ago I notice some slight twitching in my left toes and foot as well as clumsiness in my hands. I wrote it off to stress, fatigue, getting...
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