In january (i believe) I posted on this forum after experiencing twitching in my legs for a few months. I had done a lot of "research", reading, and self-diagnosing. My grandmother died of ALS in the 80's. And so familial was within my radar. However, it would take a month for me to even see a...
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We just returned from our four-week long spring trip to Yellowstone. We stayed in the Madison campground (in our trailer) for 29 nights. It was a wonderful trip and I will write a trip report for it soon.
One adventure we did not expect was the need for me to have an emergency root canal. I...
My PALS and I planned a trip to Colorado.
He is only on the Trilogy at night right now.
He just told me yesterday his breathing took a turn for the worst.
He is worried that he won't be able to breathe when we get to Denver?
I know he could possible use his Trilogy if he couldn't breathe...
I got my probable ALS diagnosis on May 24th, days before my husband and i would leave on an anniversary trip to California. We have shared this horrible news with some family and our kids. This is just overwhelming and I am so confused as to why we have to wait 6-8 weeks for a followup at the...
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My PALS has wanted to go to Mt Rushmore. I am thinking about road tripping from Oklahoma to Keystone SD.
I am not thrilled about driving through Kansas.
Anybody know of must see things going north from Oklahoma? Maybe in Colorado, Wyoming, South Dakota, Montana?
We are thinking about going...
Hello everyone my name is Nikki I'm 23 years old. It all started about a month ago when I was driving home I noticed my forearm felt tired, didn't think much of it. Left it for a few days before I looked it up on google and it came up with ALS at the very top. I started freaking out.
I went to...
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Hey, all y'all... there are ever so many new faces in here, and I truly am saddened to be welcoming you, considering the price of admission to this exclusive club. It has been awhile since I've posted, but wanted to bring you all up-to-date on the goings on. Life has been good, but the life of...
We've started our Spring travel. I have mixed emotions--excitement---fear---exhaustion (yes, it's an emotion too, as we all know)---happiness that he still wants to do something.
Yesterday we drove three hours to Hampton, VA. Our first stop was his friend's jewelry store where Matt picked up...
At Tillie's request, I'm starting this thread about my decompression vacation.
Had this trip planned and tickets bought before I last fiasco. So glad I did.
When checking in at home Brian is doing fine, his old self, like nothing happened. I did clear this trip with him before leaving and he...
Hello all. I am 45 years old and an RN. I have been doing home health for the past 5 years and have had multiple patients with MS, ALS and PLS.
About 1 year ago I notice some slight twitching in my left toes and foot as well as clumsiness in my hands. I wrote it off to stress, fatigue, getting...