Hi everyone,
I haven't posted on this forum in over a year now and I've been missing it in my life! My dad was diagnosed with ALS 2 years ago (age 57), and it was around mid-last year that I discovered this forum. It allowed me to connect with people also affected by the disease, who understood...
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Hello to everyone,
My father, age 56, was recently diagnosed of MND. It all started April 2016 when we noticed my dad started dragging his right foot. He began to trip and fall more than ever in his life. He was extremely athletic all of his life and has worked from the early age of 7 until...
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While I haven't posted recently, I have followed many of the threads. All of the posts are so beneficial and at the same time overwhelming. Anyway after another 8 weeks, I'd like to give an update on our situation. The summer heat and my slow healing foot has kept me from overworking and...
Hi all,
My PALS insists on driving. He has been and continues to. Its when we go on a family trip that I actually see first hand how he is doing. I have to say there is no swerving and he is slow, constant and safe basically. However, the other day he insisted on driving my girls and a...
My wife just got her PEG on Wednesday. Doctor wants her to start with Fibersource HN, 4 cans a day. Still waiting on delivery of the formula, hopefully it gets here early next week as we have a trip planned at the end of the week. I'm not sure if feeding bags are included, I will find out on...
Got my g-tube last month. Haven't had any issues with it and my weight loss has stabilized. I have just been letting it dangle rather than tape it up at night. So Saturday morning, I wake up and grabbed the cover to throw them off of me and "surprise":shock: Somehow I had managed to grab the...
I am not really into golf much but this pga tournament was here in WV this wk- end and my grand daughter took me. for the day.
It was a beautiful summer day and great for people watching!
Real good to hangout with my grand daughter all day and many folks just came up to say hello.
Now for some...
I am so frustrated: booking for an upcoming trip to visit my hometown, we have been unable to find any hotel with an accessible room that is more than one bed. I called every hotel in the area we want to stay and they are all just 1 queen sized bed, but we have two small children. What do...
We have been back from our spring trip to Yellowstone for a few weeks and I am finally getting around to writing a trip report to share with you some of the adventures we had.
I will break this story up into several posts in this thread. There is simply too much to report to put it all into...
With my wife's diagnosis 5 weeks ago, we have been going non stop and really hoping we don't have to keep up this pace. I'm still dealing with a broken foot so everything takes longer than I would like. First decision was to trade our fifth wheel trailer for a toy hauler version. Had to...