trilogy

My PALS has been using the Trilogy 24/7. As her face has lost muscle tone, leakage has become a major issue. Both due to noise and air blowing in her eyes. She has been using the ResMed F10 in XS and even with that we have had to modify the head gear for a tighter fit. Anyway, the problem...

Yesterday my RT from from the local oxygen and Trilogy supplier, went to exchange a refurbished Trilogy 100 for mine. Mine has over the number of hours before overall. After the " new ventilator" was fastened to the back of my wheelchair and the settings were being input to match mine, I asked...

Hello all. I'm currently using non-invasive Trilogy and Cough Assist devices, and I'm scheduled for PEG surgery on August 9. At my PEG consult yeterday, the doctor asked me if I had heard of diaphragm pacing system that's sometimes considered as non-invasive devices become less effective. My...

Hi guys, I posted a few times already here about my mother who has a possible diagnosis of ALS, but seronegative Myasthenia Gravis is also still being considered, but it cannot explain the hyperreflexia of her legs. So they think ALS and MG or maybe cervical radiculopathy. She has atypical...

Hello All, My name is Meaghan, and my mom Nancy was officially diagnosed with ALS in December by the Cleveland Clinic. We've had a scary few weeks, with her going into the hospital May 1 (trouble breathing), and coming out with a trach, Trilogy, and PEG tube (and all that comes with that-...

My wife uses the Trilogy about 12 hours a night and then about 2 hours with an afternoon nap. Her last FVC test score was 25. Is there a “normal or expected” progression of needing to spend more time on the Trilogy? I saw on one post that the pals was on the Trilogy 24 hours a day. Can that be...

I had planned to install a beauty parlor sink so I could wash my PALs hair. But now she is using the Trilogy full time and using no rinse shampoo. And the large sink isn't really needed. So I found a small ADA compliant sink (16" x 12") that fits between the wheel chair arms. But rather...

At our latest clinic visit we were advised that it was time for yet even more equipment than we were prepared to hear. Time for hospital bed, special mattress, dynavox for speech and change in PEG formula. This has left me with little time to research therefore I am asking those who have been...

It has been such a busy time and I hadn't had a chance to post earlier. He was diagnosed 3/23/2017 and progressed rapidly. By May 2017 he was on AVAPS, July 25th he got a feeding tube and by December he had pneumonia and after being intubated for a couple of weeks went home on the Trilogy. He...

My husband was diagnosed with ALS on December 1st and is already using Trilogy at night to help with breathing. We are traveling to Colorado and plan to spend some time in Breckinridge. We live in Arkansas are not used to high altitudes. Does anyone have any suggestions about my husband's...