Hello all,
For the last 4 months my brother has been having 6 weekly IVIG treatments to rule out possible MMN, and seemed to be responding - his bicep which had atrophied is growing and he's regained use of a finger that had stopped working.
However in the last few weeks he's developed a new...
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Hi,
My brother was diagnosis with ALS last July and I've been posting here since then – he's young, has a young family, and is the main caregiver/child rearer of the family – his wife works full time.
His little kids adore him. Its been very tragic seeing him unable to lift up his little girl...
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Hi, I've been posting on here on and off since my brothers ALS diagnosis last July. He's only 40 and has a toddler and a new baby only 8 weeks old. We're all devastated and I've spent a lot of time researching treatments and therapies.
His situation at the moment is that he's being given IVIG...
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My wife's neurologist first suggested ALS in early October. I've been a basket case for the past couple of months. I don't know if your brain just runs out of "sadness juice" or it develops calluses but very recently I could feel the "fog" starting to lift. I guess you just can't hurt that bad...
This was posted on another ALS Forum:
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Animal Study Suggests ALS Motor Neuron Loss May be Delayed with Triheptanoin
September 20, 2016
Teresa Pais, PhDby Teresa Pais, PhD
Because of increasing evidence...
Okay... I know it's been discussed a bit before in the forums, but not at length. But the more I read about the newly found gut-brain connection, the more I believe that a series fecal matter transplants could slow or stop some types of ALS progression. I know, call me crazy. Has anyone heard...
Hi All :)
Just wondering if anyone has had any luck with voice strengthening exercises? Also wondering if anyone else is experiencing chronic coughing (especially when speaking)? I've had a cough for about three years now, which all of my doctors believed was allergy related. After a year of...
New to this forum and not sure where to post. Diagnosed with ALS back in July 2016 at Hopkins through EMG testing. I am experiencing muscle wasting in my hands and fasciculations. I have many Lyme's symptoms as well such as ringing in the ear, dental issues, burning in hand and feet, night...
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In an odd "coincidence" (I wonder if there is such a thing, really) about one year before my husband showed a single symptom of ALS, I started to poke around and learn more about the disease. I was inspired in part by my friend Lynn's husband's Dx. Wow, I thought, someone else with this? A long...
Last pulmonary testing I had the nurse tech allowed me to recline in my pwc to do test. Then after the test were done she gave me a breathing treatment w/ Albuterol in a nebulizer.
Then did some of the test again to see if there was a change.
When we left my cals noticed I was breathing better...