treatments

Hello, I wanted to know about the value of getting genetic testing for my mother, who is 79 and in the final stages of ALS, and for me, a 40 year old father of 2. My maternal grandmother was diagnosed with Parkinson's in Asia at the age of 58. This was in the 1970's. she developed dementia...

Hello everyone, I have not been here on the forum for quite some time. It may have even been a year or so. I am progressing down the ALS black hole. So, like many others, I am looking for alternatives to deal with this crap. I looked at some of the posts on the forum about RCH4. Unfortunately...

I'm writing because I've frequented these forums in the past few months. I've read all the stickies, searched past posts, etc. I'm consumed with worry. Last spring, I bent wrong getting a toy for my son and something shifted in my back. I couldn't feel my leg for 3 months, and I had weakness...

Is anyone else registered and participating in the ALS Therapy Development Institute Precision Medicine Program? I ask because there are open participant spots (280 filled, 20 open). I don't know if participants will be able to benefit from the neuron cell lines grown from the selected...

My PALS was diagnosed Sept 2011. Prob had it a year earlier. Started in his hands and was slow moving until about 2 years ago and it went crazy. He is paralyzed except for his neck and a little shoulder which still allows him to drive his power chair. He has always had a really good outlook...

Has anyone tried either acupuncture or chinese herbal medicine to alleviate various symptoms? I was talking with a friend who has lung cancer and she said acupuncture was helping her fatigue levels. I've done 3 treatments so far and am not noticing much effect. My guy wants to refer me to...

Dear all, My name is Kay and I'm based in London. I am not an ALS sufferer but I found out about this disease by Anthony Carbajal's campaign to raise awareness about it. Most watch and even participate in the ALS ice bucket challenge but didn't take the time to actually understand the gravity of...

I would like to share my mother’s story with you in the hopes that I can receive advice regarding my family’s situation. This might seem like a very ‘dry’ explanation of the situation, but I assure you that there are a lot of emotions involved My aim is to give the clearest and most objective...

Please consider forwarding this post to any attorneys, doctors, OTs, PTs, RTs, or nurses who may be interested in volunteering for a new foundation--the ALS Action Foundation (ALSAF)--whose mission is to conduct research and promote education and awareness concerning the resources available to...

Dear ALS Patients and Families, It's really wonderful to see a place like this so active with support for each other. Thank you for being here. I'm a computer science student at Oregon State University and for my senior design project, my partners and I are building software that helps...