I finally had my appointment in the ALS clinic on Monday. I met with my case worker, OT, PT, and someone from the MDA. I now have what seems like a ream of paperwork to read through.
I guess the good news is that they hope to start my Radicava (edaravone) infusions middle to late August...
Our mother is totally paralysed with just eye movement is on trilogy ventilator and we are managing her at Home since December2010 .she do not require any oxygen support (able to maintain 96-98 o2 levels on own) unless there is some infection. Last week she went into serious condition ...
Male patient aged 35 with history of dysarthria, dysphagia and nasal regurgitation of fluids since a year now presents with stiffness of right arm and cramping of legs with diffused muscle twitches and 4-5 month history of weakness both hands and excessive laughter (emotional incontinence) no...
New to the forum, I was diagnosed 11/21/16, and have been using THC and CBD to combat the daily symptoms. I have been taking high concentrations of both daily, and am seeing the progression slow a bit. I vaporize and smoke since I still can.
I'm assuming my fellow PALS want to know what...
I have been seeing a top neurologist for several months. He has told me that I might have ALS, although I might also have some other MND or some form of neuropathy. I would appreciate any thoughtful reactions based on the following facts. I realize that any views expressed have limits, but at...
I saw this a few months back: Harvard Scientists: ALS, SMA Cure Found While Schizophrenia Treatment Is Uncertain [Video] : College : University Herald
Does anyone know more info about the above?
Hi
I am 18 years old High school student. It is Like 3 months when my first symptoms has begun. I had a significant weakness all around my body after a flu. I could do everything but it was just hard to do and I was very slow.( I know that this type of weakness has nothing to do with als but I...
18 years old
als
als?
atrophy
back
diagnose
emg
fear
flu
hope
ice
life
mri
muscle
muscle twitches
problems
reading
scared
student
symptoms
tests
treatment
twitches
twitching
wanted
weakness
Have any other patients experience with stem cell treatment for ALS at Dr Steenblock's clinic
or Dr Bryn Henderson's clinic
both in LA in the USA?
Thanks
Steve
Hello,
We first notice something was wrong with my dad around Christmas when he started to loose a lot of weight. This progressed with muscle weakness in his neck. He started to have a hard time holding his head up. He finally made an appointment with his primary care doctor. At that...
als
back
breathing
chair
christmas
clinic
conversation
dad
diagnosed
emg
end of life
family
ice
life
muscle
muscle weakness
neurologist
paralyzed
please help
tests
tracheotomy
treatment
weakness
work
wrong