treatment

I first started having symptoms 3 years ago. It started with a little left leg weakness and fatigue. My PCP said I was just getting old and that being tired was a symptom of every disease. Over the course of 3 years my left leg got weaker and weaker, and the fatigue continued. My PCP...

Hello! First of all, I am really grateful for all the help of you, PALS and CALS, provide to us that are still lost in our medical conditions, and I respect you immensely for that. In August, my first symptomes occured. After a spasm that woke me up, my middle finger on my right foot started...

The long-awaited mandatory reporting requirement has kicked in, thanks to Senator Duckworth. So if you experience any issues with airline wheelchair handling, please make a report, which will drive potential funding to reduce such incidents. Note that there is a separate complaint category for...

This is important not just for advancing SOD1 tx, but establishing another case where a smaller firm (where a lot of ALS work is being done) has successfully handed off a therapy to a larger firm. This helps incentivize ALS research. ---- [Adapted from Seeking Alpha] Having seen positive...

In addition to ALS I was told that I also have Sensorimotor Polyneuropathy, but that I need no treatment for it. Anyone have information on this combo? Evidently the first neurologist I saw in Lafayette, IN, who did a less extensive EMG than the muscular neurologist at Rush in Chicago, added...

Hello, I went to a neurologist who suggested I had ALS based on my signs and symptoms. (Constant muscle fasciculations, positive Babinski sign, left side weakness and atrophy -atrophy in left hand and right around and now both calves- slurred speech and cramps where my muscles get stuck. Also...

Hi all! Thank for the creation of this thread. I've been lurking for a while, but have a few concerns now... A few years back I would notice fasciculations on my calves when getting home from work. I thought little of them at the time. Fast forward 2016. I was bit by a tick a contracted lyme...

Find it odd this keeps popping up on this forum. Does this website and forum support this treatment? Has it been proven to cure or stop ALS?

I been on Edaravone (Radicava) since March of this year. I been experiencing brief periods of blurred vision (both eyes at the same time) during my weeks on treatment, but do not seem to have them during my rest periods. My nurses and doc has noted it, but are unsure if it is a related side...

Hi friends, I am 62, from God's own country. Diagnosed with MND-ALS+(FTD??) in March first week, this year. There is no new stories. As usual, my neurologist put me on reluzole, edaravone, methylcobalamin, alpha lipoic acid,pyridoxine hydrochloride,D3, and some other supliments . Ok. I will post...