travel

My Dad who is 60 an active and daily exercise this entire life was just diagnosed with ALS last week. We are totally devasted and feel completely overwhelmed at the task of trying to slow or better yet stop the progression of this disease. He has 4 children, a wife, 3 young grandchildren that...

I'm not really sure where to something anymore. Maybe this is the right place. :-) Recently I had to travel through the Atlanta Airport. At my gate, I was there for the next flight, on the departing flight boarding was a guy in a wheel chair like me with wheel chair assist provided by the...

The Quotes of Steven Wright: 1 - I'd kill for a Nobel Peace Prize. 2 - Borrow money from pessimists -- they don't expect it back. 3 - Half the people you know are below average. 4 - 99% of lawyers give the rest a bad name. 5 - 82.7% of all statistics are made up on the spot. 6 - A conscience...

I will be traveling out of the country with my family in February. This will be my first family trip since my walking, standing has deteriorated. We have rented a Air BNB as I thought this would give me more privacy and space from our boys and my husband could help me with dressing and getting...

Never hold your farts in! They travel up your spine! Into your brain! And that's where Sh!tty ideas come from!!!

Hello I have been reading several threads on the site since my friend was diagnosed with ALS 5 months ago. First I want to say this site has been a wealth of information and I am grateful for all here who answer questions. I was hoping to get some information on the Bipap vs the trilogy. My...

Hello All, I apologize up front for having to start a new thread as my previous one got locked due to inactivity. For those who followed my initial thread, I've been dealing with a variety of symptoms since at least late March 2017. I am a 41 year old male. As a patient who uses the VA...

Hi everyone, I wrote a couple of posts back in May after Dad's initial diagnosis but havent wrote anything since. Im having a bad day today so im hoping it might help. As I said my 63 year old Dad was diagnosed with MND in May but its only recently that it has been confirmed that he has...

I am writing this from our trailer at Madison Campground in Yellowstone National Park. I will post this message to a new thread when we get to cell phone coverage so you can share some of the adventures we are having. This has been an interesting trip. I debated long and hard about cancelling...

I am still upright and survived six weeks of travel with family, and three weeks to get the kids back at school and the check ups at the ALS Clinic. My end of the VitalityALS double blind trial thread was closed, so this will be a new update thread. The last posts were to follow up on the Trial...