therapy

Has anyone utilized this machine by a company called Amp Coil? Someone who uses the machine for other health issues showed it to my husband this past weekend and said it may be helpful to him. The guy isn't a sales person, just overheard his diagnosis and had him look at it. It's at least a...

Is anyone else registered and participating in the ALS Therapy Development Institute Precision Medicine Program? I ask because there are open participant spots (280 filled, 20 open). I don't know if participants will be able to benefit from the neuron cell lines grown from the selected...

This is going to sound crazy but here goes. My friend who drives me back and forth to Mayo Clinic has been away overseas for three weeks. I got a text from her a couple of days ago and she said she had fainted and broke her ankle in three places. She was in Berlin at the time and just got out...

The neurologist told me that a trial for BrainStorm/NurOwn stem cell therapy would be starting in my area soon. She mentioned there would be a placebo group though. I don't understand how that would work. If you end up assigned to the placebo group are they seriously going to remove your bone...

Hi all, I am having my amalgam fillings removed next week. They are made of 50% mercury and which is known to be a potent neurotoxin. I therefore then need to remove all mercury from my system. The best way to do this is using chelation therapy. My dentist says he can't help me, and I have...

I am a 22 year old male with no family history of ALS or neurological disease. I have been to several doctors who have run blood work, a CT scan, and a skin biopsy for my rash. They have all been normal except for a high vitamin b12 level due to multivitamins I was taking according to my...

Received mnd/als dx in dec/2015. Began in spring 2015 during tennis and bike ridingwith left foot drop and gait and balance problems and fatigue. After seeing multiple docs, went to neurologist, had EMG kand was told I had mnd. At that point was using cross country sticks to help with balance...

I had posted earlier about denial among family members about my PALS ( 79 year old woman diagnosed in 2013 with ALS). I took her to the clinic yesterday. Her FVC is 36. She has decent strength in her hands and forearms; voice is strong; swallowing is worse. The neurologist recommended...

Hi guys, Second time I came to take advantage of your patience with us, hypochondriacs. I hope I get three strikes :) My issue is my right hand. More specifically the abductor muscles (FPB is most affected. - my best guess as I am not an anatomy expert.. The muscles on the right hand look...

My mom was recently diagnosed with ALS (1st opinion at Mayo and 2nd at Emory). She has bulbar onset and her limbs are still quite strong. Her pulmonary tests show severe weakness (<50%) and her ability to swallow is quite poor. She is having a feeding tube inserted next week at Mayo. She...