therapy

  1. C

    Looking For Advice

    I’ll keep it brief and go by date. Currently afraid I may be dealing with early ALS. I have read the sticker and multiple other posts, I just wanted to address my specific case. I thank you all from the bottom of my heart. You are wonderful people. Male 26 Military OCT 4-5 Had Nerve...
  2. R

    I need help using new hospital bed

    I have Synergy® Air Elite Low Air Loss Therapy and a fully electric hospital bed. I can lower the bed low enough to sit on bed, but I can’t swing my legs into bed. I have ALS that has started in my hips. I ordered a trapeze to mount to headboard. I want to learn how to lean back on raised...
  3. D

    Symptoms worsening in 2 months

    Hi guys, I am new to this forum so my apologies if i get this wrong! Any help would be much appriciated as i have been dealing with these symptoms for 2 months now and have another 2 month wait to see a neurologist and i am getting concerned as things are looking and feelinh worse. Here is...
  4. S

    Brother diagnosed last week

    My younger brother was just diagnosed last week after having seen several physicians to rule out stroke, cancer, etc. The neurologist he first saw detected nerve damage but didn't give him any additional referral or information. He was eventually referred to another neurologist in Iowa City...
  5. L

    Mom diagnosed 3 days ago with ALS. Great aunt died 2 years ago from ALS. I feel lost

    I'll just jump right in... 4 years ago my great aunt was diagnosed with ALS. She passed 2 years ago at the age of 76. Last year my mom (50 years old now) had a TIA stroke which was followed by a lot of problems the doctors couldn't figure out, including she can't lift her arms up to her shoulder...
  6. F

    therapy

    Two women were playing golf. One teed off and watched in horror as her ball headed directly toward a foursome of men playing the next hole.The ball hit one of the men. He immediately clasped his hands together at his groin, fell to the ground and proceeded to roll around in agony. The woman...
  7. Ed340hp

    Tirasimptev continues VIGOR ALS

    I'll get to the update. The VitalityALS phase three trial ended or all participants and trials in October. All reports and data were due for submission. They now think it will be March before publication. The goal of continued good breathing numbers is holding steady. My FVC and SVC numbers...
  8. T

    Exhaustion

    About a month and a half ago or so, my energy level just plummeted off a cliff. It's a struggle to do anything. I get really tired going up stairs. I get tired walking. I get tired feeding. I usually don't really get out of bed until noon. I manage to get a couple feedings in before that, but I...
  9. A

    Corestem's Neuronata-R

    I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report... Amyotrophic...
  10. C

    Very scared, symptoms getting worse. Please some advice

    Hi guys To begin with - sorry for grammar. English isnt my first language. Ive been reading on this forum last month and Im truly sorry for you who must live with this absolutely terrible deseace. My story is quite long and I do understand if you thinks that this is just another twither but I...
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