testing

  1. B

    Thank you all

    I want to say thank you to everyone for all of your assistance and comments. I'm sorry if we bothered any of you I understand that you are dealing with this illness as best as you all can and I admire your strength. If anyone cared for the update we saw our final neurologist and he said no Als...
  2. K

    Sorry to find myself here but glad I found you

    Finally, here. I have been a longtime lurker. I have been tempted to ask questions, but ultimately I decided to wait. And I waited for a long time. Having been finally diagnosed, I will let you know how everything began. In the spring of 2016, I started noticing some problems with my left...
  3. S

    worried for my husband

    My husband lost strength in his left hand and is unable to touch his thumb to each finger as of two weeks ago. He has developed continuous muscle fasciculations in both of his upper arms and now both of his hands. He does not have any pain, tingling, or numbness. Just "stiff" fingers and...
  4. P

    Symptoms need further exploring?

    So I've had a slew of variety of symptoms over the years first being on and off all over muscle twitching. The started about two years ago and subsided probably in a matter of a couple of days. Always seems to come and go. I was just seeing by to neurologist for headaches and some other...
  5. P

    Scared this Holiday Season

    First, I want to say that I have been to this community off and on for the past week or so and have seen how incredibe you PALS and CALS really are. Thank you for doing something you certainly don’t have to do. This greatly helps people like me looking for some possible insight into their...
  6. L

    I have a feeling this could be ALS

    Please tell me if this sounds familar to any of you... I am a 31 year old mixed race female and 2 months ago I started to have trouble swallowing, then trouble breathing came next, soon all the muscles in my body hurt and felt very weak. The weakness and pain started with my neck, jaw and upper...
  7. A

    Conflicting emg and polyneuropathy axonal type

    First let me say this site and the folks who help are amazing. I hope I have that much empathy in charity in me. Question. I have had two conflicting ncs / emg’s - both ncs showed sensormotor poly neuropathy of axonal type. But here is the carrot. First emg showed increased insertion...
  8. G

    Home Automation w/ Axial Server & Amazon Alexa

    I worked with Team Gleason on testing their Home Automation offering: Home Automation | Team Gleason | Steve Gleason | New Orleans Saints And was asked to document my experience in a blog post. But there's a wait while the new website is built, so I thought it both useful and worthwhile to...
  9. T

    Bulbar als?

    Hi 6 months ago I got very sick lasted a month. Couldn't breathe hard time swallowing and talking. Lost 9 lbs in a week. Got rubber legs. Basically became wheelchair bound because every time I would walk I couldn't breathe. They put me on a ton of asthma meds which made me worse. Testing heart...
  10. D

    Suggestion for Fatigue?

    Fatigue is what took me to insisting on testing. I now get exhausted even taking a shower. Anything medication wise that will help? I am using a Trilogy for 3 to 4 hours at night and also use it when tiring during the day. Interestingly, I have always been a “night” person and still seem most...
Back
Top