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I have talked myself out of posting here 100 times. I have read all the stickies and am well aware of what they are saying and am trying to wrap my head around believing them. With that being said here is what is going on with me 33 yr old female with a precious 1 year old girl. 6 mos ago I...

Dear all, Sorry for the mistakes, I'm French. Sorry for the lenght (also going to blame it on the french origin ^^) First of all, i want to express all my love to those suffering with ALS. I know how frustrating it can be for someone who has got diagnosed to see ‘healthy’ people not fully...

Hello. I Live in Orlando Fl. I am 52 years young seeking a Neuromuscular specialist in my area. I have been getting passed around from physician to physician for 7 months now. My Primary care Physician team feels as helpless as I do and they have worked hard to get me answers. 7 months ago...

Good afternoon Thank you all for what you do. 34 yo male. I have read sticky but curious the communities thoughts. I have had Phlegm in my throat for 2 months now causing coughing and hacking. Cant really get anything up and its clear when I do but seems like it is always there. Recently...

Firstly, I want you guys to know I appreciate you taking the time to read my story. I am a 37 year old male, father of a two year old and I am very concerned about the probability of having a bulbar ALS diagnosis. Symptoms and dates: 1st week July 2018: buzzing in brain for 10 second...

My Dad recently has been having an increase in twitching in his stomach as well as feeling like he can’t breath out fully. It’s only been happening the last two days and last week he was at the ALS clinic for his 3 month check up and they said he had no progression. Although they didn’t do a...

Before i was diagnosed, my neuro told me to provide him with my status of Cu and Zn in blood. It was normal. What he could see from that test? Now, more than year after dg. after many times confirmed dg, I'm waiting for newest results. Should i expect same value?

My name is Stephen. I am 34 and live in the Uk. I am crying out for help and advice. I have noticed in the last week i have lost weight, and it is very clear that both my biceps are much smaller and softer. Especially the right one. Do go along with this i get twitches all over my body when...

Hey all, hope you’re doing good today. Just to prefise, I’ve calmed down since my last post, and I’m taking the necessary steps to find out what’s wrong with me whether it be anxiety or something else. So I got my EMG today at NMC, by a neurologist that specializes in ALS/MND, so I’m sure it was...

Quick history. I read the sticky and I understand the reasons behind it. First, I'm praying for you all that have been dealing with this. Second, I'm tripping about possibly having something wrong. 9 months ago I noticed my hands trembling and constipation as well as frequent urination with...