swallow

  1. M

    Is this really ALS?

    Hi and thanks for letting me join this forum. Let me start off by saying that I am not in denial, I am just following a gut feeling and want to see if anyone would do the same thing. My dad (67) was diagnosed with ALS recently. It started with him having trouble to button up a shirt and sign...
    • Mamalena
    • Thread
    • als als? back bipap breathing clinic dad denial diagnosed emg heart lyme lyme disease mri muscle neurologist night pain problem shaking speech swallow tests tiredness weakness
    • Replies: 3
    • Forum: Newly diagnosed
  2. R

    Afraid

    For 2 years now i have the following problems (excuse for the faults, come from Holland), my problems; -symmetrical weakness in legs, a bit in arms, a litte increases in 2 years, look thinner -little stifness upper leggs, specially walking downstairs -problems with swallow foot, liquids going...
    • Rogers
    • Thread
    • als als? back bed brain clinical cold dysphagia emg food foot is this als is this als? mri muscle muscle weakness muscles neurologist pain problems research saliva spasms swallow tests twitches weakness worried
    • Replies: 12
    • Forum: Could this be ALS?
  3. F

    Dysphagia for a month and a half

    Hi all, I want to thank anyone in advance who can shed some light on my situation. I’m a 25 year old male with no existing health conditions. Starting about 6 months ago, I’d occassionally have a period of 5-10 minutes where I’d feel like I was unable to breathe well. This would happen...
    • free6yu
    • Thread
    • bed cold dysphagia food go away health ice mistake saliva swallow swallowing work
    • Replies: 1
    • Forum: Could this be ALS?
  4. L

    Eating Food with Vent/Trach

    My boyfriend is newly on vent/trach. At the hospital we were told by an MD that he will not be allowed to eat or drink again (he has a feeding tube). At the L-Tach rehab the speech therapist gave him mashed potatoes and he aspirated them and then got pneumonia. He eventually went to...
  5. B

    Fears of Twitching and Weakness

    Hi, I am new here although I have been reading some forums for a couple of weeks. Just wanted to get your opinion on my symptoms: Started with a chills sensation that lasted three days along with pins and needles on my head in May but stopped after that. This followed with some hard headaches...
    • b7022
    • Thread
    • arm back burning choking dysphagia eating finger food foot headaches lump new here pressure reading sleep swallow symptoms test twitching ultrasound wanted weakness wrist
    • Replies: 10
    • Forum: Could this be ALS?
  6. S

    What is this?! Please help...

    Hi Everyone, This is my very first forum I have ever done. I’ve debated for quite some time now about posting so here goes nothing. I’m a 33year old female. I have 3 small children. I know something is going on with my system but I don’t know what. Last spring I got massive head fog and body...
    • Sarah84
    • Thread
    • als als? anxiety arm autoimmune back burning children clinical cramps depression diagnosed emg feeling weak female fibromyalgia kids neurologist onset pain please help scared shaking swallow symptoms teenager testing twitches twitching weakness wrong
    • Replies: 11
    • Forum: Could this be ALS?
  7. Kristina1

    choking on liquids question

    I use thickened liquids by mouth and my tube for most of my liquids, but there are some that I enjoy thin and still indulge in, like a daily cup of tea or coffee. Plus there is always saliva in my mouth, and sometimes I choke pretty hard on my own saliva. Today I had a bad aspiration/choking...
  8. S

    Moderate Dysphagia found in Swallow Study, plus tongue aches

    Hello all, thank you for your community. I have been seeking some form of diagnosis for a year or so now after beginning a variety of neuro type symptoms last Fall... which were initially numbness and tingling (I know, not ALS), which morphed into body wide twitches (worries began here)... which...
    • sjh5gg
    • Thread
    • ache age als back bfs bulbar bulbar als bulbar onset clinical confusing death diagnosis dysphagia early emg fatigue fingers mnd onset reflex research scared slurred speech speech swallow swallowing swallowing issues symptom symptoms tongue twitches worries
    • Replies: 7
    • Forum: Could this be ALS?
  9. T

    hospice drugs and limited food intake

    My mom is down to drinking just one boost a day...sipping it slowly throughout the day. Does anyone know how long she can survive like this? She also had a half of a rootbeer today since she was craving that. But, no other liquids. She can barely swallow and is very weak. Also, meeting with...
  10. M

    Salivary Glands Botox Shot

    I am Bulbar Onset ALS and I decided to get the Botox shots in my salivary glands to help with the constant drooling. 2 days later, I could not swallow at all. I called my ALS doc and they set me up for an emergency feeding tube. 2 days after that I was in the hospital with pneumonia. Finally...
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