support

Saw neurologist today. A couple of days earlier because she had a cancellation. She recommended I go to Brigham and Women's in Boston to a muscle specialist. She said he was best in world lol. I suggested she do another EMG before I go to Boston. She agreed to that idea. I'll have to wait until...

I need to share this with people who know what im going through. I am very shaken up after worst laryngospasm to-date last night. I have been getting them over the past year, and this one was ten times worse than any ive had before. I went to breathe in and hit a rock solid wall. I tried to...

Hi, I'm male, 22 yrs old, and I very worried about these symtomps. I know that ALS is rare, specially in people of my age, but I dont think there is other disease that can mimic these symptons that i'm feeling. - since dec/2017: post nasal drip - i'm feeling that my breath is low. When I run...

Hello I am new here so Im grateful to anyone who takes the time to respond. I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble...

Hello there, I’m Karen, I’m 53. My problems started a while ago and I have been so confused, upset and angry with doctors since this has all began. I really don’t think I have MND, or maybe I’m in denial but it just doesn’t add up to me. I would really like your opinions and guidance, it would...

Hello to all: I am a newbie and was diagnosed after a year of symptoms in June of 2018 at OHSU here in Portland. (I had previously gone to Mayo in Rochester and was badly misdiagnosed...a story for another time perhaps.) I have been reading through the forums and am truly blown away by the...

Can anyone recommend books that offer perspective, support, and peaceful contemplation for people in our situation? Something that might help me reconcile emotions and fears and gain more peace with myself? But please, NOT a religious oriented book. Thank you in advance for any recommendations.

This is my original thread - Do I Have ALS? Is This ALS? - ALS/MND Support Group Forums /41308-possible-tongue-atrophy.html I have gone to my rheumatologist and he found nothing... Which I wasn't expecting but thanked God it was. However, my speech seems to be getting worse. I stumble over...

My Dad is newly diagnosed at 59 years old. He’s always been in great shape, on a hockey team, long distance bike rider, and golfer. When his hand weakness started a year ago he slowly began to lose strength in hand and then some muscle atrophy in same arm along with twitching. My question is...

Hello, After two years and a half of symptoms, my father has been diagnosed with PLS. We are still quite astonished and it is hard to stomach the truth. Given that the EMG was clean, the doctor thought that this was the most likely cause for my dad's symptoms. We are starting treatment next...