support

Hello everyone, 38 yo here who was in great shape until he realized his right arm progressively became weaker, from lifting 30 lbs easily to not being able to lift 12lbs. Fasiculations normally appear after strenous activity, sometimes at rest too. Thankful to still have grip strength and able...

Hello First I want to say I am so sorry for the affects this disease has caused on peoples lives. I have neurologist appointment but I am about a month and half away from it. I have some symptoms that I would like to run by to see if I can rule out ALS So I didn't really notice anything...

You’re all going to think I’m crazy..I know. I promise I’m not chasing this disease. I just want support through my journey. I just want to ask if I could hang around here with all of you, I love all of you. Your stories inspire me and talking to you all makes me feel so much less pain. It helps...

Hello all. Just wanted to thank anyone for taking the time to read to and/or respond to my post. In June, 4 months ago, my shoulder started to hurt. I had to quit my job because of the pain. I was diagnosed with shoulder impingement, and got several cortisone shots, attended physical therapy...

Hi, I was diagnosed with Bulbar Onset about 7 months ago. I am still able to eat some things, but they recommended that I get the PEG now, while I’m still fairly fit. My problem is that they situated under my breast, which is large. When I sit, my breast covers it, and it gets irritated. I...

Hi all, This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category. My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...

A symphony of support | Mail Tribune

Hi Everyone, I know its been awhile since I have posted. I just felt that today was right. The love of my life has decided that the time has come to end the fight. He's been an amazing fighter for over three years. He dealt with this disease with far more postivity, and courage then I ever...

I have all the symptoms, increasingly bulbar to be specific. I have been in and out of the hospital the past couple of weeks, I have the follow-up appointment with Neuro on Wednesday. The first time he saw me he took ten minutes and then told me it was probably stress. I know why its because I...

Find it odd this keeps popping up on this forum. Does this website and forum support this treatment? Has it been proven to cure or stop ALS?