supplements

  1. Inventor

    Supplement Wiki updated

    I tabulated the supplements according to their effects in order to make it easier to select the relevant ones. Supplements listed by their effects - MyWiki The main table can be accessed through the link at the top of the page.
  2. G

    BioVerity, a vitamin supplement

    This is being discussed in the fb group Research on Motor Neuron Disease. A couple of PhD's at McMaster University in Canada have been working on a vitamin supplement for over 15 years. The mix of 30 over the counter vitamins and supplements, which seems to prevent and reverse damage to cells...
  3. V

    Disappointed in people

    Since my husband was diagnosed with ALS, we have had several acquaintances (I won't call them friends) who seem to view his condition as a marketing opportunity for the multi-level marketing schemes they've been suckered into. I have had people try and sell him on Monavie, Melaleuca...
  4. S

    Advice for twitchers

    Those of you with twitching, cramping and any number of other motor, sensory and/or autonomic symptoms, please get your vitamin B6 levels checked and consider whether a statin drug may be causing or aggravating your issues. I have an underlying neuropathy that was almost symptom free (I was...
  5. B

    A Question about Detoxification

    So I wanted to post this because I've been hearing about and reading about detoxing as a way to slow progression. On the site healingals.org there are a number of stories of PALS who claim to have reversed als. I don't know how many of those have a validated dx, although I do know that after...
  6. C

    B12 Methylcobalamin Injections 25 mg daily

    Wondering if anyone has been taking Methylcobalamin injections and what is there experience with it, cost, effectiveness? I have a prescription from neuro but have not had it filled yet. One "sterile compounding" pharmacy told me $1500 a month, another told me $300 a month and still waiting on...
  7. S

    Old and Diagnosed

    I am a 64 year old male and I was diagnosed with ALS in January 2016. My primary symptoms have been a progressive weakness in my arms. While the EMG says the legs are also weakening, I do not yet feel that. I also at present do not have any "upper motor neuron" symptoms. I have tried to get...
  8. H

    Supplement question

    I know this has been discussed many times before but finally my mother is on a regime and I want to know your valuable thoughts and get inputs. So here's the routine: 1. Riluzole before breakfast 2. L-serine (around 15mg) somewhere in afternoon before her physiotherapist comes. 3. Acetyl...
  9. D

    My son only 19, So worried

    My late husband passed away in 2007 at age 52. His father also had "probably als" and passed away in his fifties, so we are assuming it was familial ALS, although his father's diagnoses wasn't definite. My son is a college student, age 19, and under a great deal of stress. He recently began...
  10. N

    questions about twitching

    Hello - this is my first post to this site. I have been experiencing unexplainable symptoms since May 2015. I am a 40 year old female who used to be in fairly good health. That all changed in May. I started having body wide muscle twitching which has only gotten worse. This is only one of MANY...
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