supplements

  1. R

    Is it Madras form of MND

    Well, it started 6 years back with hand tremor and I am pretty sure for a month or so , the pinky and the ring finger were numb (tingling feeling) most of the time prior to tremors . I have always have had anxiety issues . I was then diagnosed by the doctor as having "essential tremior".But ...
  2. Kristina1

    feeding tube

    I have an upcoming consult with the GI people for a feeding tube. What kinds of questions should I ask them at my appointment? I was told it would be a short (20 min) procedure, and then an overnight at hospital for observation. My breathing numbers are good but the pulmonologist at clinic...
  3. M

    Supplements That Help

    I'm interested in hearing what supplements, if any, you've tried and how they may have helped? Or any that you avoid and why?
  4. KimT

    What blood work to you do?

    I'm curious to hear what other PALS do for routine blood tests after they have been diagnosed. I do Comp. Met Panel and CBC every six months. I also do TSH every six months due to Hashimoto's (I use iodine supplements to get back from hypo to normal). I also do a C-reactive protein every six...
  5. I

    Is bulbar possible?

    Hi! Please be kind to me, I'm scared and I'm trying to receive help from our local hospital but they won't do much. So lately I've been having some difficulties with pronouncing some consonants, for example three days in a row I've hade problems with saying words with L and R. I was saying the...
  6. T

    Upset stomach

    Recently, my feedings have started to just not sit well in my stomach. I'm supposed to do at least 5, preferably 6, feedings a day and I'm just dreading them. At one point, I was using Boost Very High Calorie for my feedings. But I was paying out of pocket for that, and, at $40/box, that will...
  7. Inventor

    Editing the Supplement Wiki now requires logging in

    Since a couple of months ago, there has been a constant stream of spam penetrating the filters. I found no other option than to prevent anonymous editing of the Wiki. However, creating an account is trivial: just click the link at the top-right corner of the page. Welcome! ALS Supplement Wiki
  8. C

    Frustated with Excuses (Venting!)

    Hello everyone, I posted awhile ago, but I need to know that I am not the only one feeling like my ALS boyfriend uses his diagnosis as an excuse to not be involved in activities. And please let me explain before anyone thinks I am being selfish. We were together for several years before his...
  9. rose

    Taking various types of medications with a peg tube

    Hi Everyone, I just got a new post up. It has a short video I shot, and some basic information on converting medications and supplements that are in pill form, to being tube ready. This post is not long, but, but there is more information on this subject in the "New to the Tube?" section...
  10. D

    Worried about having ALS

    I have recently been getting very worried about ALS and if I may have it or not. I've read many things that contradict each other on various places but here seems to be the place where I could get some reassurance. To start off I'll tell a little about myself. I am 16, male and I'm 120 pounds...
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