supplements

  1. jethro

    Warm-cold foot

    Can anybody comment how should be feet temperature in ALS? Warm, cold or doesnt matter? I had cold feet by march, and then, suddenly, i got warm all over my body, esspetially foot. Guy with more ALS experience said that it is related to supplements i use. i use just b vit, e vit and q10, some...
  2. W

    Absolutely Frightened - Insight?

    So I've tried to stay away from posting on this board, but just received a call from my doctor and it has me absolutely terrified. My timeline... About two weeks ago I started to feel weakness in my left hand. It wasn't the type of clinical weakness you read about here, but in doing some back...
  3. Bestfriends14

    A question for PALS

    Hello, My husband has just ended his clinical trial (he dropped out March 28th) for Pimozide. Apparently, he's not progressed in his right leg or arm since last September but has only slightly in his left leg, which is his drop foot leg. However, I am finding it harder and harder to believe...
  4. B

    Article about demographics etc for ALS reversals (Dr. Bedlack)

    I follow Dr. Bedlack on twitter and this popped up yesterday....really interesting. Makes me want to try some of the supplements they mentioned: "The odds of taking curcumin, luteolin, cannabidiol, azathioprine, copper, glutathione, vitamin D, and fish oil were higher for cases than for...
  5. A

    Help with diagnosis

    My mother is having a very hard time getting a diagnosis. She is 71 years old. Tingling in her legs and fatigue with even one block of walking in her legs for the past three years. Two years ago she started having difficulty clasping a necklace and now there is some atrophy between her thumb...
  6. M

    Drugs and supplements

    All articles talk about drugs and supplements to help with strength and twitching but nobody says what they are. I’m getting frustrated with trying to find what they are. Can someone please help me with this. Mod Note: email deleted. Plz send a Visitor Message if you wish to respond. Or...
  7. S

    Lunasin again

    Can anyone point me to a report, formal or informal, on the outcome of Bedlack's Lunasin study? I see nothing new in ALS Untangled or via Google search or search here. I'm using up the supply I have on hand, and while my progression is fairly slow, it is happening and the only benefit I've...
  8. worrieddaughter77

    Questions to doctors during second ALS clinic visit.

    My dad has been diagnosed with "MND likely ALS " a month ago in North Western University hospital in Chicago. In 4 days we are going to his second ALS clinic visit. During our last visit, i was too overwhelmed and unprepared to ask questions, but i want to make sure i am all of the important...
  9. worrieddaughter77

    Vitamins/supplements to slow progression?)

    Hi, in various threads i noticed that some of you swear by vitamin D, or other supplements. Could you please share some that you are taking? Are you taking it per dr prescription, or after doing your own research? Thank you very much! Anna
  10. N

    My Dad has progressive bulbar Palsy

    Hi everyone, I wrote a couple of posts back in May after Dad's initial diagnosis but havent wrote anything since. Im having a bad day today so im hoping it might help. As I said my 63 year old Dad was diagnosed with MND in May but its only recently that it has been confirmed that he has...
Back
Top